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  • bilvers
    replied
    Not sure yet, its started in my throat area with speech issues and swallowing.

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  • David R
    replied
    Hi Andrew,
    Welcome to the forum, sorry about your diagnosis.

    I and 67 and was diagnosed 16 months ago with Bulbar onset and live about 50 ish? miles from you in Ipswich. I’ve learned a lot since diagnosis and I’m sure we will all be able to help you with any questions you have especially about the help you may need, normally after diagnosis you are over whelmed with the amount of appointments you’ll have with various specialist but it will all be useful moving forward.
    Such a shock to start with but I’m sure you will get passed that point as I did and make the most of life.
    Regards David

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  • 4x4hawk
    replied
    Hi Andrew,
    Can I ask how long it took for you to get a diagnosis.

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  • Ellie
    replied
    Welcome to the Forum, Andrew, sorry you’ve had to join us.

    You’re obviously very much together, posting on Day 1 - that's the RAF-man in you ??!!

    May I ask if you have limb onset ALS/MND as opposed to bulbar onset or another type of MND?

    My entry level advice to you is to stay as healthy, mobile and safe as you can; be positive and live the most fulfilling life possible; check out dietary/food supplements; listen to your body.
    As you’re newly diagnosed, see what clinical trials your MND Clinic is offering and get on one.

    For now, stay safe

    Love Ellie (13yrs post diagnosis)

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  • bilvers
    started a topic Shocked New starter

    Shocked New starter

    Hi Everyone, I’ve just joined as I was diagnosed with MND this morning at the ripe old age of 55. Having seen that this affects anyone and at any age, it’s good to know there are lots of people to reach out to of all ages.

    I’m Andrew, and I was in the RAF for 30 years so seen quite a bit of life. I’m happy to hear from everyone, particularly if you have good advice . I live near Huntingdon Cambridgeshire so if you are close, it would be great to hear from you also.

    This is only day one of this but I hope I will have many more days to tick off too .
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