Hi Everyone
My name is Lucy and although I have taken some good advice from this forum, this is my first time posting.
My husband was diagnosed with ALS in March 2019 age 54, It has been devastating. I feel I have coped up until now but recently its been a real struggle. Its heart wrenching to watch his daily struggles, he was a hard worker who couldnt sit still but now he's a shadow of himself. He has no movement in his arms and his legs are now starting to go the same way. There's many things he can no longer do by himself and he finds it hard to sleep now as he can no longer turn himself in bed. This is such a cruel disease and its so hard watching him suffer. I always put a face on for him as I think he's got enough without worrying about me, but I see his posiitivity starting to go and I truly feel for him and anyone else living with MND.
My name is Lucy and although I have taken some good advice from this forum, this is my first time posting.
My husband was diagnosed with ALS in March 2019 age 54, It has been devastating. I feel I have coped up until now but recently its been a real struggle. Its heart wrenching to watch his daily struggles, he was a hard worker who couldnt sit still but now he's a shadow of himself. He has no movement in his arms and his legs are now starting to go the same way. There's many things he can no longer do by himself and he finds it hard to sleep now as he can no longer turn himself in bed. This is such a cruel disease and its so hard watching him suffer. I always put a face on for him as I think he's got enough without worrying about me, but I see his posiitivity starting to go and I truly feel for him and anyone else living with MND.
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