hi everyone
my name is steve. i was born in 1951. i was diagnosed with als/mnd summer 2019. my wife insisted i go to the doctor but i just kept saying i was alright. eventually i gave in and we went to see a doctor (we live in portugal) and he telephoned the hospital and we did get to see a doctor very soon. at first we thought it was parkinsons but then we received the als/mnd diagnosis. it was a shock but we decided to take every day as it comes and hope for the best. unfortunately the virus put an end to all of our hospital appointments. feeding tube, help with breathing came to an end. an appointment for august has arrived so we are starting to feel more hopeful and less alone. my problems started with the tops of my arms constantly shaking and then problems with my right hand and then the left. i find it difficult to use cutlery, pick up a cup or plate. getting dressed can be very difficult. sometimes i have problems swallowing.i am constantly tired. exhausted all the time. i wake up exhausted. if i could just have some energy to do some exercise it would help. one good thing is i do not have any pain at all. it would be nice to hear from everyone.
my name is steve. i was born in 1951. i was diagnosed with als/mnd summer 2019. my wife insisted i go to the doctor but i just kept saying i was alright. eventually i gave in and we went to see a doctor (we live in portugal) and he telephoned the hospital and we did get to see a doctor very soon. at first we thought it was parkinsons but then we received the als/mnd diagnosis. it was a shock but we decided to take every day as it comes and hope for the best. unfortunately the virus put an end to all of our hospital appointments. feeding tube, help with breathing came to an end. an appointment for august has arrived so we are starting to feel more hopeful and less alone. my problems started with the tops of my arms constantly shaking and then problems with my right hand and then the left. i find it difficult to use cutlery, pick up a cup or plate. getting dressed can be very difficult. sometimes i have problems swallowing.i am constantly tired. exhausted all the time. i wake up exhausted. if i could just have some energy to do some exercise it would help. one good thing is i do not have any pain at all. it would be nice to hear from everyone.
Comment