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    Hi

    I'm Bonnie,. I'm 76 and was v active until.i got mnd 3 years ago, I'm.struggling now as the disease takes its hold, and I'm.in a wheelchair all the time and my sleep is frequently disturbed by pain in the hips, legs and feet,. Would like to connect.wth.people going through similar thing,

    #2
    Welcome to the Forum, Bonnie, sorry you've had to join us

    Is there someone who can assess you and address your pain? Often in MND pain can be caused by a change in gait, if still walking, making one use compensatory muscles; from sitting awkwardly for long periods; from high muscle tone or spasticity; associated nerve pain etc. By someone, I mean a physiotherapist, OT, GP, MND Nurse, Neuro etc.

    If you know what's causing your pain, you can get the appropriate help to decrease the pain.

    Our lives our hard enough without being dragged down by debilitating pain...

    Take care.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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