Hello everyone. I've joined this forum as I know it will help to talk to people going through similar situations and to help me to understand how to cope. My stepfather, who has been a father to me for nearly 50 years, was diagnosed with mnd about a year ago following symptoms which he had been experiencing for a while. He is 75 and over the last few months has deteriorated rapidly. He was the last 'day' patient at a hospital in March when he had a PEG feeding tube fitted and the ward then locked down for COVID-19 treatment only. He has carers visiting him twice a day who clean his tube and help him with medication etc.
I live up in Yorkshire and he is in Buckinghamshire so I have started driving down once a fortnight and staying for a few days but I feel so helpless as he can't communicate (his speech has just about gone now) and it is heartbreaking to see him get weaker and weaker. I am now planning to move down there and live with him for the forseeable future, although I have no idea how long that will be - possibly only a couple of months.
I would just appreciate being able to share my thoughts here and to read other people's stories and learn how they are dealing with difficulties etc.
I live up in Yorkshire and he is in Buckinghamshire so I have started driving down once a fortnight and staying for a few days but I feel so helpless as he can't communicate (his speech has just about gone now) and it is heartbreaking to see him get weaker and weaker. I am now planning to move down there and live with him for the forseeable future, although I have no idea how long that will be - possibly only a couple of months.
I would just appreciate being able to share my thoughts here and to read other people's stories and learn how they are dealing with difficulties etc.
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