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  • matthew55
    replied
    One of my fondest memories is the time I got a full pedicure and manicure. Bliss! 😊x

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  • DeeH
    replied
    I cut Thomas' nails (feet and hands). I have a special curved set of sissors. I did my grandad's for years. Also insist the hands and feet are soaked first to soften. I do it weekly so they don't need much and use a file to smooth the edges. Need to keep an eye on them as the fingers are very curled, waiting for special compression gloves as the first 2 lots were too small. I did offer to varnish the nails as well, for a complete mani/pedi but Thomas declined that.

    As an update regarding shaving, Thomas is growing a beard as it didn't work out, he is not very happy with this but I think he looks dashing.

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  • Betty sitbon
    replied
    Thank youBarry for responding!
    why are toenails so scarey to cut on someone else? Fritz flinches and resists when I tackle him to do it🤣good idea of your wife that get someone in to do it

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  • Barry52
    replied
    Hi Betty and welcome to you and Fritz.

    Your post resonates with me as my wife cuts my hair, although this doesn’t take long as there is nothing on top. She refuses to have anything to do with feet and my strength is failing. I recently bought a pair of sharp nail clippers and proceeded to cut my own toenails but managed to draw blood on both big toes. After much family nagging I have now found a visiting chiropodist.

    Best wishes,
    Barry

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  • Betty sitbon
    replied
    Shaving and haircuts have been a challenge! I am lucky we don’t go out much because the first few haircuts were like punk rock , while I was trying to get a more classic look. I watched a how to video and I think I am doing better. Fritz keeps asking while I shave him or cut his hair..are you done yet?
    toenails and fingernails are a whole different matter... scarey to do on someone else!

    Leave a comment:


  • Jer788
    replied
    Hi Dee, I’ve got the Phillips’s series 9000 and it’s great. Head face everything and no worries about pressure. It really does rejuvenate you a good old shave and shower. I can hardly wait for every second Sunday 😂.
    Currently getting a wet room installed and logistically it’s been a nightmare Installation while showering in Mams en-suite has resulted in a couple of falls lately.
    I’ll have to start a different thread when the room is finished to give my final thoughts.
    Best wishes Jer x

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  • matthew55
    replied
    I can brush my teeth but I cannot feel if they are clean and I can't rinse my mouth or spit. Happy days. x

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  • Tess
    replied
    I do the shaving here too and although I want to say i'm great, I'd be lying haha. Practice makes perfect, however with all of lockdown to practice, I don't think I'm improving too much. I'm 'far too gentle' apparently but you're right, when it's not your own face, I don't want to hurt someone in the process, so a good pressure is key. I'd say it's a skill. I always kept telling my partner 'look if it goes badly, it's hair, it'll grow back hahaha- we're trying our best.

    What I am good at is teeth brushing. Got this in the bag. It's the little things

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  • DeeH
    replied
    Hi Jer
    it is not going well.

    I think I need to search how to shave someone else with shaver, also how to know pressure and such when it is not you.

    All the best

    Donna

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  • Jer788
    replied
    Hi Dee and welcome to the club.
    Let me know how you get on with your shaver. I got a flash one and it’s just not very good.
    Best wishes Jerry

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  • Ellie
    replied
    I just love the intricacies of the English language 😁

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  • DeeH
    replied
    Hi Ellie

    Ha ha,

    just reread what I wrote "travel hopefully". Maybe that is what they thought we meant actual physical travel, were as, we were thinking more emotionally. Like keeping positive and not getting into the doldrums too much.

    It is what mum and I talk about in her dementia journey, kind of short hand for, prepare for the worst and hope for the best. Glad that the 3 years is a standard thing until more information is known.

    We have been lucky to have had some good experiences overseas but we have no plans except explore the UK, closer to home, COVID and other things allowing.

    Thanks everyone for the replies.

    Hope to see the MND nurse soon and the OT is coming back with equipment next week.

    Thomas' electric shaver arrived so hoping the results are as good as the hair clippers.

    have a lovely FRIDAY

    Cheers

    Donna

    Leave a comment:


  • Ellie
    replied
    Yes, that "3-5yrs" life expectancy is what all the literature says and maybe the OT is inexperienced with MND, but you're spot on, it is dodgy indeed to mention any prognosis at all, particularly at Thomas's very early stage.

    Nobody can predict anyone's expiration date and it's no different in MND.

    I'm sorry the world has shrunk considerably for overseas travel for you both, that's really unfortunate timing, but hope you can organise something.

    Take care.

    Love Ellie.

    Leave a comment:


  • Doug Carpenter
    replied
    Hi Donna

    I’m so sorry that you and your husband have had to embark on this journey.

    Predicting the duration of MND is notoriously difficult. It depends on so many individual circumstances. Professionals tend to quote 3 years in the early stages – it’s simply an average figure derived from a large dataset. But they will often revise their estimate later in the light of further patient-specific information.

    Each person is different and a more useful indicator is that MND tends to progress at the same rate at which it starts. Again, there can be exceptions.

    It’s probably better to concentrate, as you are doing, on making Thomas’s environment as comfortable as possible.

    All the best

    Doug

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  • DeeH
    replied
    Hi Ellie

    The OT and Physio seemed nice and professional. Looks like we are getting a few portable adaptions. All agreed that the place is unsuitable and we told them of our plans to move. Waiting until we see the MND nurse and outcome of benefit/PIP etc. Only thing was OT mentioned length of time of illness of 3 years ? to end which I knew was dodgy. Told them of our plan to travel hopefully, we are not oblivious to the trajectory of the condition but a little positively is required. We told them that the consultant was very blunt about the news. All in all a good day, the swivel chair looks great for over the bath, if we can get one.

    Kindest regards

    Donna

    Leave a comment:

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