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Still waiting.... but getting there but need a little hepp

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    Still waiting.... but getting there but need a little hepp

    Hi all,
    I posted on here back in April. And things have moved on. I get to see neurologist on the 7th spetember. He's ordered emg and n.c.t. Which I have on Monday coming. But I've started with new symptoms which scare me a little. I wonder if anyone can shed light to it. I have started to feel really heavy around my shoulders. Like am wearing a lead coat or like ive got someone sat on my shoulders but I don't if you get me. It feels weird. Also I've started to have funny feelings in my fingers like numb in both hands and also a twisting feeling in my forearms which I find strange. Also I feel like am still wearing my glasses when I take them off and feel like someone is touching my neck. Am also feeling like ive got something stuck in my throat. I wondering if anyone else has had same issues. I would be great full. For your reply
    Last edited by Flowers71; 10 August 2020, 16:43.

    #2
    MND is all about muscle failure and your symptoms don't tally with that.

    Good luck with your testing and hope you get answers next month.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      Thank you Ellie. X

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