Evening all, my name is Gemma and my mum currently has MND, she is the fourth person in my family to be affected by MND but the closest to me and would to be able to talk to people going through the same thing.
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Hi Gemma welcome but I wish we had never met if you get me. ππBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
hello gemma
i am so sorry to hear about your mother and other family members. you can talk to us and hopefully we can help out or just be a sounding board.
love and hugs
denise xxxwhen i can think of something profound i will update this.Comment
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Hi Gemma, Iβm sorry to hear about your mum and other family members. Sounds like you will have
enough experience of the wicked disease to be able to offer as much tips as you will receive. Sending a big hug, love LynneALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Welcome to the Forum, Gemma.
I'm sorry to hear how your family, and particularly your Mum, has been affected by MND.
Feel free to ask questions, give your thoughts or just have a rant - we understand...
Love Ellie.βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
βComment
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Hi new friends
so very comforted to finally find people who will understand, are knowledgeable , are warm and caring, going through MND , to share my thoughts , smiles, concerns with. My partner Fritz was diagnosed 5 years ago and I am caring for him in our home.Fritz was a home builder and carpenter who loved nothing more than being outside cutting wood, making fires, grilling and hiking. I am so proud of his attitude and problem solving skills. We face each day figuring out new solutions and that becomes our new normal. Thank you for being here and I am lucky to have found you.
Betty SitbonComment
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Uh oh.. I think I put this post in the wrong place.. trying to figure out how to navigate!Comment
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Rules are made by fools πxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Hi betty
really nice to meet you. I love your positive attitude. I guess you could have put this under introduce yourself but some of us have found you already.
a big welcome to you and your partner. There's some wonderful people on here xxx
when i can think of something profound i will update this.Comment
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Hi Betty and a warm Welcome to you and Fritz.
Love Ellie.βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
βComment
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More warm welcomes from me to our new friendsComment
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Hi Betty and Fitz
What is Fitz doing to keep occupied?
Thomas (diagnosed officially 2 months) is getting bored with documenteries and reading news on computer
WelcomeDonna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.Comment
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Hi Betty, Fritz and Gemma. Welcome to our little club some great advice and support on here.
Best wishes Jerry πComment
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