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    young parents

    Are there any young parents on here who would like to chat and share ideas tips and advice on parenthood when you're locked in?

    #2
    What do you mean by "locked in", Ben - it can mean different things to different folk - are you in bed 24/7 or up and about in a chair using eye gaze, for example?
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      I am guessing that it took Ben some considerable time to write his sentence. If there are any young parents out there with MND, please contact Ben.
      Copyright Graham

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        #4
        locked in as no voice or no working limbs

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          #5
          Although I'm not so young now, I was once 😏 When I was diagnosed at 38, my kids were 3 and 5. They are now 17 and 19, so were reared by me and their wonderful dad.

          Are you Ben G-----? I follow posts on social media by someone similar to you, mostly because you/he was same-ish age as me at diagnosis.

          Love Ellie.
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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            #6
            Am I the only one who thinks that the original question was a bit creepy? 🤨

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              #7
              matthew55 I for one didn't think it odd.
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                #8
                ben1 Feel free to PM me Ben, if you prefer.

                Love Ellie.
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                  #9
                  Well done Ellie. All people visiting this forum quite understandably have problems and it's important that they are not compounded.
                  Copyright Graham

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