My name is Laurie, aged 74, diagnosed in June with bulbar onset MND. While the diagnosis was a shock, I was expecting something not very nice, as I started having problems (very, very slight) back around Feb 2019 and they'd been getting gradually worse. The frightening part to me was not knowing what exactly was going on (voice detriorating, swallowing difficulties, muscular weakness when standing) and whether anything could be done about it that wasn't being done due to delay in diagnosis. Investigations were held up by my breaking my hip on 23 Feb 2020 and having to cancel a key diagnostic appointment, shortly to be followed by lockdown. However, once my husband and I got over the initial shock of the diagnosis, we've both found that the anxiety that came from not-knowing has gone away. At least we can now plan and organise.
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Welcome Laurie, sorry you've had to join us. As you say, bad as the diagnosis is, at least you know what it is and can start planning.
Hope the hip is fully healed.
I look forward to getting to know you.
Love Ellie.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Welcome Laurie,
Thank you for joining the forum where I'm sure you'll find lots of help if you need it.
I trust we will hear more of you as time goes alongWarmly
Andy
Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues – Campaign contact Winchester and Southampton branch, and trustee of the Association
"Things turn out the best for people who make the best of the way things turn out"
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Hello Laurie, I too was diagnosed in June 2020 with MND. (PMA) The diagnosis was a shock (I was expecting ME) My symptoms started in Feb 2019 and were getting worse, my crucial EMG appointment was due on 24th March but was cancelled on 23rd March because of lockdown. I can definitely relate to your feeling a sense of relief at knowing. I felt lifted and goal orientated to get lots of important things done. I send you strength, positivity and hope you have lots of support xxI have the ability to cope with this and I can still be the best person I can be. This is my life - if I am happy others around me are happy too
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