Hi all, not quite pleased to be a member and not quite over the moon to see so many lovely people on here but its very much appreciated to have some support over this confusing/emotional period. I am here because my mother was diagnosed just after the first lockdown and since then its felt like riding a rollercoaster through a hurricane. I signed up a while back but just dipped my toes slightly into a bit of voyeurism but as I watch my mum change rapidly ive took the step to introduce myself.
My brother is in the medical profession which is very helpful, insightful and he is doing a grate job all round, but I feel speaking to people in the same position may help with the mental challenges ahead.
Last week my mum had an NG fitted which didn't really go as planned so has been in great discomfort and now needs more assistance with meal times. For this reason I decided to move in and do overnights to help out. This is my 4th day here and its been a real eye opener at how difficult she finds almost every little task. She must have been really struggling but being a strong minded independent woman she has been covering to what extent. For 4 nights I have lay listening to her breathless fighting saliva and ultimately not sleeping. Of course everything is being addressed by a great medical team but when your looking on at this level of suffering it never feels fast enough.
Today we have some new medication coming which should address the saliva problem and tomorrow the respitory team are bringing some apparatus for raised co2, not quite sure which type as yet.
I know everyone will respond better to different treatments and its a game of fine tuning and adapting but ill be spending some time reading over other people stories which will hopefully give me some expectations and tips on how to perform better at the job in hand so thank you all
My brother is in the medical profession which is very helpful, insightful and he is doing a grate job all round, but I feel speaking to people in the same position may help with the mental challenges ahead.
Last week my mum had an NG fitted which didn't really go as planned so has been in great discomfort and now needs more assistance with meal times. For this reason I decided to move in and do overnights to help out. This is my 4th day here and its been a real eye opener at how difficult she finds almost every little task. She must have been really struggling but being a strong minded independent woman she has been covering to what extent. For 4 nights I have lay listening to her breathless fighting saliva and ultimately not sleeping. Of course everything is being addressed by a great medical team but when your looking on at this level of suffering it never feels fast enough.
Today we have some new medication coming which should address the saliva problem and tomorrow the respitory team are bringing some apparatus for raised co2, not quite sure which type as yet.
I know everyone will respond better to different treatments and its a game of fine tuning and adapting but ill be spending some time reading over other people stories which will hopefully give me some expectations and tips on how to perform better at the job in hand so thank you all
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