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  • Ellie
    replied
    Welcome Lilly - sorry you've had to join us though but glad that you took the leap and posted 😃

    Yes, unfortunately FTD can sometimes go hand in hand with ALS, to varying degrees.

    Physically, is it 'only' his hands which are affected at this stage?

    I hope you both have good support from your MND Clinic and/or Community Services.

    There are some people here whose partners have FTD along with ALS/MND but they may not be online for a while. Feel free to ask any questions, have a rant or a weep with us.

    Look after yourself too.

    Love Ellie.

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  • matthew55
    replied
    Hello Lilly, well done for joining us. There are so many people here who will help with good advice and humour. Stay Strong 👍x

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  • LillyC
    started a topic New to forum FTD/MND

    New to forum FTD/MND

    Hi, I have summoned up my nerve to post !
    I am a full time carer for my husband who was diagnosed with FTD/ MND 3 years ago. I have not come across anyone with the same diagnosis and wondered if anyone has had a connection to this rarer form . He has ALS form of MND and has recently lost the use of his hands. It is has been very difficult and upsetting but I know how supportive the forum is. Many thanks for reading!
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