Hi
My name is Daniel and I’m 39 from Wigan. I was diagnosed with motor neurone disease on 1st December.
It wasn’t a total shock as my neurologist was raising the possibility of it being MND.
Obviously this has had profound effect on everything in my life and I’m really scared about the future. I have been prescribed Riluzole and it makes me really tired. I have read on her about vitamins and they do seem to perk me up a little.
I have a wife and 2 daughters who are 3 and 9. I worry that I won’t see them grow up and that they will see me slowly deteriorate and that they will be ashamed of me.
Has anybody else had counselling or anything because I really don’t want to be prescribed anything.
I’m planning on returning to work soon so hopefully that will help but I’m very up and down.
My name is Daniel and I’m 39 from Wigan. I was diagnosed with motor neurone disease on 1st December.
It wasn’t a total shock as my neurologist was raising the possibility of it being MND.
Obviously this has had profound effect on everything in my life and I’m really scared about the future. I have been prescribed Riluzole and it makes me really tired. I have read on her about vitamins and they do seem to perk me up a little.
I have a wife and 2 daughters who are 3 and 9. I worry that I won’t see them grow up and that they will see me slowly deteriorate and that they will be ashamed of me.
Has anybody else had counselling or anything because I really don’t want to be prescribed anything.
I’m planning on returning to work soon so hopefully that will help but I’m very up and down.
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