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Andy Wilson

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    Andy Wilson

    Hi just been diagnosed with mnd on 17 Dec and am scared stiff of it. I am 63 male and thought I was fit but this news has knocked the stuffing out of me, would like to meet,talk with like minded people for a little help thanks andy

    #2
    Hi Andy
    sorry about your diagnosis and yes it is a big shock. My husband has mnd and we've been through a lot coming to terms with it. There's a lot of lovely people on here that will offer help and support and I'm sure they will be posting a welcome soon.
    Denise xxx

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      #3
      Hello Andy, sorry you’ve had to join our exclusive club, there is probably a lot going through your head right now so early in your diagnosis, we have all been there and the guys on here will help you get through as best we can, you are not alone, take your time to come to terms with it, I promise it does get easier...don’t panic.
      shaun
      As long as there’s golf and beer I’m happy

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        #4
        Hi Andy. Welcome to the place where people really get life as we know it. You're not alone my new brother. 👍🙂x
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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          #5
          Welcome Andy to our community forum

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            #6
            Welcome aboard the rollercoaster, Andy - there are downs to living with MND, but also ups, so strap yourself in!! (and no, I haven't been on the Christmas Eve sherry)

            As Shaun says, it does get easier, or you just learn to adapt to the new you. It can be difficult at times, so having a good sense of humour, not taking life too seriously and having a giant dollop of resilience and positivity are useful weapons to have in the arsenal.

            I hope you have good support Andy.

            Take care, stay safe.
            Love Ellie.
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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              #7
              Welcome Andy. Coming to terms with an MND diagnosis is not easy, but sharing your concerns and your feelings with fellow sufferers can ease the way. Lizzie x

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                #8
                Hi Andy, hope you get lots of support from health professionals , famiy and Friends.I was diagnosed in June and it really was a shock but as Ellie said most people reach an acceptance.It has hugely comforted me to engage in zoom support group meetings and on here.The health professionals here in South Warwickshire are a great team.Take is steady as its early daysI am sure many of the people on here will reach out to you.Best Wishes Mary.

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                  #9
                  Hi Andy, welcome to the forum. I too am 63 and was looking forward to many years of retirement when I started with symptoms last year, just after my wife retired. Several weeks of stress and worry followed. In October last year a neurologist said he thought it was CIDP, which is treatable but not reversible. However, in July this year my diagnosis was changed to MND. I'd thought it might be MND all along so was mentally prepared for the worst. As everyone says it does get easier, but give yourself a few weeks to come to terms with it.
                  Each day is made easier with a bit of humour.

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                    #10
                    Thanks to all for replying realy thought I was on my own,me and wife are still crying wondering where i went wrong,haven't spoke to any one yet, got meeting with care nurses on weds 30th,via Microsoft team its good to know there,s someone in same situation to chat to , still scared stiff but cheers everyone love andy

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                      #11
                      Originally posted by GaryM View Post
                      Hi Andy, welcome to the forum. I too am 63 and was looking forward to many years of retirement when I started with symptoms last year, just after my wife retired. Several weeks of stress and worry followed. In October last year a neurologist said he thought it was CIDP, which is treatable but not reversible. However, in July this year my diagnosis was changed to MND. I'd thought it might be MND all along so was mentally prepared for the worst. As everyone says it does get easier, but give yourself a few weeks to come to terms with it.
                      Cheers mate still getting to know this post andy

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                        #12
                        Originally posted by Ellie View Post
                        Welcome aboard the rollercoaster, Andy - there are downs to living with MND, but also ups, so strap yourself in!! (and no, I haven't been on the Christmas Eve sherry)

                        As Shaun says, it does get easier, or you just learn to adapt to the new you. It can be difficult at times, so having a good sense of humour, not taking life too seriously and having a giant dollop of resilience and positivity are useful weapons to have in the arsenal.

                        I hope you have good support Andy.

                        Take care, stay safe.
                        Love Ellie.
                        How do u cope Ellie, this is what scares me about mnd don't think I could cope with a situation like yours I,d go into panic mode, you must be such a brave lady love andy

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                          #13
                          Hi Andy, welcome to our family. As everybody has said it does take time to come to terms with our diagnosis. But most on here are positive. I too was a very fit 62 year old (hill walking and scrambling my passion) so thought that me and Steve would have many years ahead to explore the remaining mountains in the UK that we hadn’t tackled and some abroad. I hope that your support team are as good as mine in Greater Manchester. Take care and I hope that you can still have a happy Christmas, love and hugs, Lynne
                          Last edited by Lynne K; 25 December 2020, 21:57.
                          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                          I'm staying positive and taking each day as it comes.

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                            #14
                            Andy, I think that because we don't suffer a traumatic spinal injury and suddenly go from 'normal' to having different abilities, rather that the progressive nature of MND is somewhat easier to come to terms with.

                            I don't think it's bravery that gets me through but being stubborn and headstrong 😏 People all have their own way of coping - there is no right or wrong way, it's whatever works for you at a particular time.

                            I had counselling early on, which helped me, and I wouldn't have ever thought I was a counselling type of girl but needs must!

                            Best wishes to you and your wife.

                            Love Ellie.
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                              #15
                              Hi Andy,

                              MND is so poorly understood, even by the 'experts'. It is important to get the best indication from your neuro and my personal view is that a gene test provides the clearest view of prognosis. I was given the bad news in January 2008 having had symptoms for a few years.
                              Copyright Graham

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