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Andy Wilson

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  • Music man's wife
    replied
    Hello Andy, sorry to hear your diagnosis. My husband was diagnosed 2.5 years ago, I think it took a good six months for the diagnosis to sink in.
    My husband has loads of interests and just take each day as it comes, I think it's his positivity that keeps him going.
    Take things slowly, there is a lot to come to terms with.

    ​​​

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  • richard
    replied
    Andy. You/we haven’t done anything wrong. We are just unfortunate and are where we are. We have all been and are going through the same emotions. That’s normal.

    stay safe and keep smiling

    Richarrd

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  • richard
    replied
    Hi Andy
    Welcome. You can ask any questions here, shout, scream, rant,laugh and whatever. There will always be someone who can help and guide you.

    Stay safe and keep smiling
    Richard

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  • SueM
    replied
    Hi Andy, welcome to the forum. I was diagnosed in September and still coming to terms with it all. I’m currently waiting to speak to the clinical psychologist, as I’m finding it very difficult to get my head around the uncertainty of it all.
    I have really good family support and that is helping me through all of this.
    The forum is great for advice and general chat. Take care, you’re not alone. Sue

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  • Barry52
    replied
    Hello and welcome Andy.

    I can understand how upset you and your wife must be as we have all experienced this. After a difficult year you have had the shock news and just before Christmas so your head must be spinning. As others have mentioned you will learn to cope and adapt to the changes in your health and above all try to keep a positive outlook on life. We are here to listen and offer advice when required and we often inject a little humour into our exchanges.

    Best wishes,
    Barry

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  • Graham
    replied
    Hi Andy,

    MND is so poorly understood, even by the 'experts'. It is important to get the best indication from your neuro and my personal view is that a gene test provides the clearest view of prognosis. I was given the bad news in January 2008 having had symptoms for a few years.

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  • Ellie
    replied
    Andy, I think that because we don't suffer a traumatic spinal injury and suddenly go from 'normal' to having different abilities, rather that the progressive nature of MND is somewhat easier to come to terms with.

    I don't think it's bravery that gets me through but being stubborn and headstrong 😏 People all have their own way of coping - there is no right or wrong way, it's whatever works for you at a particular time.

    I had counselling early on, which helped me, and I wouldn't have ever thought I was a counselling type of girl but needs must!

    Best wishes to you and your wife.

    Love Ellie.

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  • Lynne K
    replied
    Hi Andy, welcome to our family. As everybody has said it does take time to come to terms with our diagnosis. But most on here are positive. I too was a very fit 62 year old (hill walking and scrambling my passion) so thought that me and Steve would have many years ahead to explore the remaining mountains in the UK that we hadn’t tackled and some abroad. I hope that your support team are as good as mine in Greater Manchester. Take care and I hope that you can still have a happy Christmas, love and hugs, Lynne
    Last edited by Lynne K; 25 December 2020, 21:57.

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  • Andy wilson
    replied
    Originally posted by Ellie View Post
    Welcome aboard the rollercoaster, Andy - there are downs to living with MND, but also ups, so strap yourself in!! (and no, I haven't been on the Christmas Eve sherry)

    As Shaun says, it does get easier, or you just learn to adapt to the new you. It can be difficult at times, so having a good sense of humour, not taking life too seriously and having a giant dollop of resilience and positivity are useful weapons to have in the arsenal.

    I hope you have good support Andy.

    Take care, stay safe.
    Love Ellie.
    How do u cope Ellie, this is what scares me about mnd don't think I could cope with a situation like yours I,d go into panic mode, you must be such a brave lady love andy

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  • Andy wilson
    replied
    Originally posted by GaryM View Post
    Hi Andy, welcome to the forum. I too am 63 and was looking forward to many years of retirement when I started with symptoms last year, just after my wife retired. Several weeks of stress and worry followed. In October last year a neurologist said he thought it was CIDP, which is treatable but not reversible. However, in July this year my diagnosis was changed to MND. I'd thought it might be MND all along so was mentally prepared for the worst. As everyone says it does get easier, but give yourself a few weeks to come to terms with it.
    Cheers mate still getting to know this post andy

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  • Andy wilson
    replied
    Thanks to all for replying realy thought I was on my own,me and wife are still crying wondering where i went wrong,haven't spoke to any one yet, got meeting with care nurses on weds 30th,via Microsoft team its good to know there,s someone in same situation to chat to , still scared stiff but cheers everyone love andy

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  • GaryM
    replied
    Hi Andy, welcome to the forum. I too am 63 and was looking forward to many years of retirement when I started with symptoms last year, just after my wife retired. Several weeks of stress and worry followed. In October last year a neurologist said he thought it was CIDP, which is treatable but not reversible. However, in July this year my diagnosis was changed to MND. I'd thought it might be MND all along so was mentally prepared for the worst. As everyone says it does get easier, but give yourself a few weeks to come to terms with it.

    Leave a comment:


  • Mary C
    replied
    Hi Andy, hope you get lots of support from health professionals , famiy and Friends.I was diagnosed in June and it really was a shock but as Ellie said most people reach an acceptance.It has hugely comforted me to engage in zoom support group meetings and on here.The health professionals here in South Warwickshire are a great team.Take is steady as its early daysI am sure many of the people on here will reach out to you.Best Wishes Mary.

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  • Lizzie
    replied
    Welcome Andy. Coming to terms with an MND diagnosis is not easy, but sharing your concerns and your feelings with fellow sufferers can ease the way. Lizzie x

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  • Ellie
    replied
    Welcome aboard the rollercoaster, Andy - there are downs to living with MND, but also ups, so strap yourself in!! (and no, I haven't been on the Christmas Eve sherry)

    As Shaun says, it does get easier, or you just learn to adapt to the new you. It can be difficult at times, so having a good sense of humour, not taking life too seriously and having a giant dollop of resilience and positivity are useful weapons to have in the arsenal.

    I hope you have good support Andy.

    Take care, stay safe.
    Love Ellie.

    Leave a comment:

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