C F S inquiry

[tersmurf]

Hello all
i Have been reading allot of posts. Thank you for the shared information
I am interested if anyone on here has CFS. Cramp Fasciculation Syndrome ? The Severe rare from
I have been dealing with this for a few years and it is becoming progressively worse. The last treatment was the plasma exchange. Which worked miracles. But is more likely I may have to do this again
has anyone had this treatment
thank you. T

[GaryM]

Hi. I thought CFS normally referred to Chronic Fatigue Syndrome, alternatively known as ME. In any case plasma exchange is one of the treatments for GBS/CIDP which my MND was originally diagnosed as. There is a Facebook group, but initially have a look here under plasmapheresis which is the same thing.

https://gaincharity.org.uk/faq/faqs/

[Ellie]

tersmurf No sorry, I haven't come across anyone with cramp-fasciculation syndrome - it is very different to MNDs.

I'm pretty sure you'll find a Forum for it, even if it's US-based.

Best of luck to you.