Hello All
I am new to this Forum. Have been diagnosed in October 2020. I have Bulbar Onset...So trying to come to terms.
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nilesh welcome to the forum, I was diagnosed with PMA type of MND September 2020. Like you I’m still coming to terms with this, I have an appointment with the Neuropsychologist this month, which I’m hoping will help.
Best wishes
Sue -
Hi Niles
lovely to meet you. I hope you find help and friendship here. We all try our best to support each other. Anything you want to know or perhaps want to have a rant about we are here for you.
Denise xxxwhen i can think of something profound i will update this.Comment
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I'm sorry nilesh I didn't spell your name wrong on the last post it was changed for me 🤔when i can think of something profound i will update this.Comment
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Hi Nilesh. Snap! I'm one year in and I'm fully mobile but mute. But everyone treds a different path. 😁xBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xxComment
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Welcome to the forum Nilesh. Lots of friendly helpful people here.Each day is made easier with a bit of humour.Comment
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Hi Nile’ welcome to our forums. It is a big shock and as everyone says it takes a long while to come to terms with. I be hope that you have good support around you. LynneALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Hello Nilesh and welcome to the forum. Loads of great folk here that will offer support and share experiences.Comment
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Welcome to the Motley Crew nilesh Yes, it takes some time to get your head around the diagnosis, but we just kind of get used to it as time passes. There'll be bumps in the road ahead but we're here to lend a listening ear, a shoulder to cry on or to share experiences and knowledge.
Love Ellie.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Hello and welcome Nilesh. We are here to support you on this journey with MND so if you have any questions just ask and someone from this group will offer an answer.I’m going to do this even if it kills me!Comment
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Hello Nilesh ...Comment
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Welcome Nilesh to the group no one wanted to join. It is devastating when you are first diagnosed. Happy dreams and plans evaporate into concerns, worries and sadness.
Here you can ask whatever questions you want, shout, scream, cry and laugh. We have all done it. You will get all the help you need here.
Take care and keep smiling
RichardRichardComment
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