Hello everyone, I my name is Margaret I was diagnosed with MND just before Christmas 2019 I had been noticing different things like a dropped foot, and I fell over a few times before I went to my GP who referred me to a falls clinic. They gave me exercises to do but I started to trip up quite a bit after one of these falls I was given some tests Since then my arms and legs have become weaker. I can’t even write, I used to enjoy knitting, making cards and various other little things to pass my days away. Anyway I look forward to hearing from you on this forum xx
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Lovely to meet you Margaret - sorry it's under such circumstances though...
My mum also loves her knitting and crafts, talents which I definetly didn't inherit 😥, and I know how much they mean to her, so I'm desperately sorry your hands are losing some dexterity and function.
Anyway, a warm welcome to the Forum and hope we get to know more about you.
Take care.
Love Ellie.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Hi Margaret, sorry that you had to give up your crafts. I had to the same as well as give up hill walking. I sold two knitting machines, both electronic and excellent condition. I used to knit socks too with 5 needles. Sad to loose all that. But I’ve made up for it with the hundreds of books that I’ve read (approx 150 since lockdown started). I’m looking forward to us chatting, love Lynne xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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Hi Margaret
it's lovely to meet you though the circumstances could have been better. I hope we hear from you and you get to feel at home. We are a big cross section of the community with the main aim to be there for each other.
love and hugs Denise xxxwhen i can think of something profound i will update this.
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