My wife got the diagnosis on Monday (15th) obviously devastated - we need all the support we can get
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Jo here from Pinner
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Hi Jo
I am sorry that you have a need for the forum but welcome x You must both be shellshocked but you will find lots of help and support here from people who have walked in your shoes
Take each day at a time and find out what you need to but don't google and frighten yourselves.
much love
Sarah x
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Sorry about the diagnosis.
Welcome to the place where you can ask anything and there will be someone who will offer advice. You can also let off steam, share your experiences and even have a bit of a laugh, although laughing is probably the last thing on your minds just now.
Just know people understand and care
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A warm welcome to you, Jo from Pinner, and to your wife too.
These early days are very tough, an emotional rollercoaster, but it does get easier.
Look after yourself too, it's not all about the person with the MND!
We're here for you both.
Love Ellie.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Hi Jo, A warm welcome to the forum from me,
I'm so sorry for your wife's diagnosis... Its such a shock isn't it and I found all the advice overwhelming.
The forum is a good place for friendship and support from people who really understand. There is always someone to answer a question, whether it is practical or emotional.
Take care of yourself too,
Love Debbie x
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Hi Jo, so sorry about your wife’s diagnosis. It must be difficult for you both at the moment. I guess that another worrying thing is how to explain MND to your children. There’s age specific booklets available for children from the MND Association that would likely make this easier. If you get in touch with MND Connect
they can advise how to broach the subject and explain which publications are currently available.
Look after yourself, LynneALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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