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Close Relative - possible MND?

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    #46
    I think we are all still reeling. It hasn't sunk in really, Mum got very upset, so I gave her a big hug and said it's still Dad, he's still with us, his mind won't be affected, and he can still nag us if he wants to...! I think the only worry he has is being in a wheelchair, but, the consultant said that this isn't always the case. We are all going to get together for a socially distanced family meeting to discuss his wishes/needs (including the parents) and make sure he is getting what he wants, and is leading us on his decisions, whilst he can tell us his thoughts on the matter. Sooner rather than later.....
    Carer for Dad - MND (ALS) 22/4/21 and Mum Alzheimers 26/5/21.

    Girding my loins and grinding my battle axe for them both... https://forum.mndassociation.org/cor...ilies/wink.png

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      #47
      Hi Positive vibes,

      So sorry it is bad news! I found once I was diagnosed I got the care and support needed and we didn't feel so isolated. However, obviously you wish it was something else and it's such a shock even if it's suspected.

      Thank you for letting us know. Take care of yourself..Im sending you positive vibes .
      Love Debbie x

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        #48
        Positive vibes I’m sorry to hear your news. Remember we are with you all the way on the is. You can ask whatever you wan, nothing is too trivial, and someone will be able to share their experience of that particular concern. Take care and hugs to all your family.

        Richard
        Richard

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          #49
          Originally posted by Deb View Post
          Hi Positive vibes,

          So sorry it is bad news! I found once I was diagnosed I got the care and support needed and we didn't feel so isolated. However, obviously you wish it was something else and it's such a shock even if it's suspected.

          Thank you for letting us know. Take care of yourself..Im sending you positive vibes .
          Love Debbie x
          Thank you Deb

          That's the one big positive - the consultant is pulling out all the stops to get him support and help, which we really need, since Mum is slightly worse (possible early dementia - thats another thing for me to tackle).

          Dad seems pretty fatalistic and accepting at the moment, as he suspected it all along, and knows there isn't a cure. I am grabbing all those positive vibes you are sending, thank you.

          Luv PV
          Carer for Dad - MND (ALS) 22/4/21 and Mum Alzheimers 26/5/21.

          Girding my loins and grinding my battle axe for them both... https://forum.mndassociation.org/cor...ilies/wink.png

          Comment


            #50
            Originally posted by richard View Post
            Positive vibes I’m sorry to hear your news. Remember we are with you all the way on the is. You can ask whatever you wan, nothing is too trivial, and someone will be able to share their experience of that particular concern. Take care and hugs to all your family.

            Richard
            Thank you Richard. I really don't know where to start.... I think I need a new thread, maybe most appropriate on the carer's thread on here, so I will pop over there to start one. I feel like hiding under the duvet and being in denial, so, goodness only knows how he feels, but that is defeatist and I am not going to do that. I want to be there for them 100% and fight to get them the best help possible. Thanks everyone, I am going over there now....
            Carer for Dad - MND (ALS) 22/4/21 and Mum Alzheimers 26/5/21.

            Girding my loins and grinding my battle axe for them both... https://forum.mndassociation.org/cor...ilies/wink.png

            Comment

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