Mnd and chemotherapy

[Coxl3]

Has anyone any knowledge on mnd and AC chemo ? I’m starting treat ment tomorrow and I also have als ... I’m worried it may exasperate my condition. Advice wanted . Thanks

[Gordan1111]

Hi Coxl3 - sorry I can't help but hopefully someone else here may be able to. x

[Lynne K]

Hi Cox13, I’m not qualified to advise I’m afraid but I wanted you to know that I read your post and wish you well whatever’s your chemo therapy is for. Lynne x

[Ellie]

Has anyone any knowledge on mnd and AC chemo ? I’m worried it may exasperate my condition.

I would have hoped your Doctors can give you/have given you some help on what you're facing into, and any potential pitfalls of undergoing chemo with ALS. There is a member who had chemo (IDK if it was AC) so hopefully they will login soon.

If you have access to a Dietitian, ask for guidance on diet too.

Wishing you much inner strength over the coming months.

Love Ellie.

[Coxl3]

Hi
no I’ve spoken to my oncology and neurologist and neither have any knowledge of this so no information to give me . I’m awaiting a response from Oxford university but no idea when that will be .

[Mary C]

Hi, are you linked to a hospice or palliative care team that can explore this or may have knowledge of chemo and ALS.
Hope treatment goes well.Best wishes Mary