Hello I’m Douglas

[Gillette]

Hi Dis,

Sounds confusing, having the offer of a bed in both hospitals. I would suggest you ring the MND nurses to ask them to explain. Do you have their telephone number?

[Dis1960]

Dina, the consultant is Ms Chaouch and as soon as we got to Area 3 she appeared and exclaimed “ Mr Douglas you made it today”

Terry and Ellie
Both beds are for the sleep study/ breathing tests after I mentioned that my nose is almost permanently blocked with catarrh - 1 bed today at Salford Royal and 1 today or tomorrow at wythenshaw

So tomorrow I’ll be admitted to Wythenshaw

[Ellie]

Hope it all goes well for you.

Though 'sleep study' is often a misnomer with so many wires and probes attached to you!

X

[Terry]

Hi Dis;

Sounds like a few nights of good sleep, not. seams crazy to go straight from one to another hospital.

Best wishes, Terry

[Lynne K]

Dina, John Ealing was the neurologist that I saw in 2016 in Fairfield Hospital Bury as an outreach clinic. He sent me for an MRI on my spine (that showed seriously degenerated discs) and then discharged me. I didn't realise that he'd discharged me. 10 months later I went back to my GP. He was very annoyed that I hadn't received a further appointment so he re-referred me. That time I chose to go to the main hospital in Salford. This was much further but I was treated much better. I've spoken about this previously so I'll leave it there. Lynne

[Gillette]

Hi Dis,

All the best for your sleep tests.

When you saw Dr Chaouch, did she have the registrar, Andrew Sneddon, in with her? I think he's a bit of a hot shot (as well as pleasing eye candy!). He and I were talking about various research projects - all neuro but not all MND - including one involving electrical stimulation to the diaphragm.

If you are having a PEG fitted, were you invited to be on Dr Hamdallah's PEG study? If not, would you be interested?

[Gillette]

Hi Lynne,

I remember you talking about John Ealing last week. Yours was such a different experience from mine. I have been very happy with the way he has treated me. I suppose it's different strokes for different folks.

[Dis1960]

Dina, yes Andrew was in the room and was adept at reading what I was typing whilst incomplete
There was a geneticist from St Mary’s as well

[Gillette]

Dina, yes Andrew was in the room and was adept at reading what I was typing whilst incomplete
There was a geneticist from St Mary’s as well

Yes, Andrew is very bright. I get the feeling he will be a high flier. I don't know anything about the geneticist as my MND is not genetic.

[Dis1960]

Greetings from sunny Wythenshaw ��

[Gillette]

Greetings from sunny Wythenshaw ��

Good luck!

My son, who lives in Essex, asked me where Wythenshaw was. I said it's so far south from Radcliffe that it's classed as the south of England!

[Dis1960]

Thanks Dina so far the only thing wrong is how many attempts were made to get blood samples

[Ellie]

Dina, Lynne and Dis,

I think it must offer a degree of comfort that you all can chat about, and compare notes on, your clinic experiences?

The Manchester Amigos

Love Ellie.

[Lynne K]

Thanks Ellie x

[Terry]

Hi Dis;

Taking arterial blood out of the wrist can be hard and painful. Not always but i have mine taken from the ear, they reckon it's not quite so accurate.

Love Terry