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  • Terry
    replied
    Hi Devonmaid;

    Great that you had the tests at home, so much nicer for hubby.

    Do you know what his arterial CO2 level was?

    Love Terry

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  • Devonmaid
    replied
    My husband had his test done at home. I had to post the equipment which had the relevant data on it. We then had a home visit by the respiratory specialist nurse who can also did arterial bloods gases in our home with portable equipment. We were offered NIV, which my husband trialled. A great service, which I am sad other areas aren't getting.

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  • Terry
    replied
    Hi chrissie,

    Sorry to hear Doug is back in there with serious issues.

    Hugs Terry

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  • Gillette
    replied
    Oh, Chrissie, I'm sorry Doug is back in Wythenshawe: it's so disappointing for both of you.

    I am also on the Ventilation Unit at the moment. Following on from Ellie's comment about discussing ongoing treatment, the nurse in charge of the Respiratory Nurses is called Debbie and she helps patients to complete an Advance Directive / Decision to Refuse Treatment (and probably also an Advance Care Plan). I know that she will be on the ward on Monday. The Macmillan nurses are also very helpful and staff on the ward will contact them for Doug, if he would like them to.

    If you are on the ward and need someone other than staff to talk to, please feel free to come and see me. I am in Bed 7, which is in the bay immediately opposite the Nurses' Station. I have plenty of tissues; my hugs are pretty feeble, but freely given; and I have as much or as little time as you need. No pressure, no obligation, just a little bolt hole if you need it. The offer is also open to Doug, of course.

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  • Lynne K
    replied
    Chrissie, I'm sorry to hear about your dear Douglas. It must be very hard and upsetting for you. I hope that whilst Douglas is in hospital that you can have some 'me' time. I hope that his chest infection clears and they can sort out his CO2. Take care xx

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  • Ellie
    replied
    Sorry to hear that Douglas is back in hospital, Chrissie - it's very distressing for you to hear the "make him comfortable" phrase...

    Hopefully those antibiotics will do the job. Is he linked to a hospice? They might take him and treat his current infection - they're much different places to hospitals (in a good way!) - and speak to you both about symptom management & future care.

    When you say Doug was apparently unresponsive when the paramedics were at your house, but was aware what was going on; do you think he was just 'zonked' from the infection / CO2 retention? I presume he would normally be able to move his head (yes/no) to indicate he didn't want to leave home - mind you, that'd need to have been followed by a chat with them which maybe would've been difficult.

    I am sorry to bring this up but have you and he had a conversation about ongoing treatment?

    You're doing a great job caring for Douglas, in very difficult and challenging circumstances - you're an unsung hero.

    Please give Douglas my best.

    Big hug to you.

    Love Ellie.
    Last edited by Ellie; 15 September 2019, 14:02.

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  • chrissie57
    replied
    chrissie here

    Hi, everyone
    I am Douglas' wife/carer (although it appears not a particularly great example of the latter&#128558. Douglas came back into Wythenshawe hospital on Friday evening - his CO2 readings were apparently too high to be measured and he has an infection in one of his lungs.

    He was stabilised in the Resus ward and has now been transferred back to the Ventilation Unit, oddly into the very same bed he was in before. The readings are still higher than they like but are coming down and he is on anti biotics for the infection. We don't know how long he will be in for.

    The doctor seems to be saying that if he relapses, they will just keep him 'comfortable'😥.

    As you might be aware, Doug was determined not to return to hospital. But I have no Power of Attorney and he seemed to be completely unresponsive so I had no Power to stop them taking him - but the worst thing to me was when he indicated this morning that he had been completely aware of what was going on but was completely unable to communicate😢😢😢

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  • Kayleigh
    replied
    Hi Douglas,

    I hope you are enjoying your home comforts and everything is going smoothly with the carers.

    Love and best wishes to you and your wife,
    Kayleigh x

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  • Terry
    replied
    Hi Douglas,

    How are things with you. Hopefully better, we would like to know.

    Love Terry

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  • Deb
    replied
    Hi Douglas,

    So glad you're home .. Theres no where like it . I hope everything is in place for you and that you're both managing.

    Love Debbie x

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  • Gillette
    replied
    Hi Douglas,

    I'm pleased for you that you are finally home. I hope everything is slipping into place for you.

    All the best,

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  • Terry
    replied
    Hope you have the basic things sorted at home Douglas;

    It's must be so hard for you both to be home for a few days till you get things in place.

    Best wishes, Terry

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  • shrew
    replied
    So glad that you are finally home. Take care x

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  • Sheila
    replied
    Glad you are finally home Douglas. What a day you have had.
    Best wishes Sheila.

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  • Kayleigh
    replied
    It's good to hear that you are home Douglas. I expect you could have done with some of that Fortsip after having to wait in the ambulance for so long!

    I hope you are enjoying your home comforts and hopefully everything will go smoothly with the carers from now on.

    .... and yippee - no more bland hospital food!

    Love and best wishes to you and your wife,

    Kayleigh x

    Leave a comment:

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