My name is Howard and I live in the US. My diagnosis with a rare form of MND called Progressive Muscular Atrophy (PMA) was finally revealed to me on October 10, 2018, after 15 months of evaluations. Right now I'm finding information about PMA to be very elusive and many times, just plain inaccurate. My best description of PMA is that it appears to mimic ALS but only from the waist down. Only my legs are involved and over the past 15 months they have become so weak I now require a cane to walk without falling down. My hope is this forum will help me connect to others with the same or similar disease, and share ideas on the best ways to slow the relentless progress of something we know will eventually lead to complete immobility.
On a positive note, my mental state right now is very positive and hopeful. I have accepted my diagnosis and will move forward doing whatever it takes to tackle this head on. I look forward to hearing from others with MND and will share anything that will make our journey a battle to maintain the best possible quality of life possible under the circumstances.
Thank you for being here and for all this group does!
On a positive note, my mental state right now is very positive and hopeful. I have accepted my diagnosis and will move forward doing whatever it takes to tackle this head on. I look forward to hearing from others with MND and will share anything that will make our journey a battle to maintain the best possible quality of life possible under the circumstances.
Thank you for being here and for all this group does!
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