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    Hello everyone, I’ve joined the forum as a source of information and support. My husband has been diagnosed earlier this year with MND and is increasingly weak. Symptoms were in place for about a year before diagnosis. Mainly limb but some bulbar too. He is 60. As you all know, this is extremely hard for us to come to terms with and I’m particularly trying to grapple with duration and what to expect. Best wishes

    #2
    Hello and welcome Aisling and your husband. You must both be wondering what is the future going bring whilst trying to digest the mountain of information that the health professionals bombard you with. You mentioned support and information from this forum and you can be sure of that. Just ask any questions and someone here will have experience they are willing to share. I was the same age as your hubby when diagnosed and later the consultant said it is a slow progression form of MND.

    Best wishes to you both.
    I’m going to do this even if it kills me!

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      #3
      Hi Aisling, welcome to our family. Good days, bad days we live them altogether. Stay Strong.
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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        #4
        A warm welcome to you both, Aisling.

        We are great at being able to answer many questions but unfortunately nobody can answer that all important question of 'how long'.

        Hopefully you both have good support and your husband has good support from OT, Nursing etc in the community.

        Love Ellie.
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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          #5
          Hi Aisling, welcome to the forum and it’s good that you’ve found it. Plenty of information; advice; support; friendships and a place to offload if you feel the need. Take good care of yourself, Lynne x
          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

          I'm staying positive and taking each day as it comes.

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            #6
            Hi Aisling and a warm welcome to the forum ,

            I'm so sorry for your husband's diagnosis... its such a shock even if its expected. I remember feeling totally overwhelmed and initially i couldn't take on board all the well meaning support from professionals.

            The forum is a good place for friendship and advice from people who really understand so do ask if you have any questions.. there's usually someone with an answer.

            Take care and best wishes to you both,
            Love Debbie x

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              #7
              A warm welcome from me too Aisling. I agree with what the other lovely people have said. I would add that caring brings many challenges both physical and emotional. Please feel free to ask about anything that is causing you as carer concern.

              Take care

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                #8
                Hello Aisling - it is a terrible blow isn't it. As Ellie says the progress can vary from person to person. Most on here l think will urge you both to try and enjoy the pleasures you both can x

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                  #9
                  Welcome Aisling

                  Please ask about anything you need to know however trivial it may seem.

                  Everyone has a different path but most problems have been experienced by someone here.

                  Be kind to each other x Sarah xx

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                    #10
                    Thank you to all of you for your extremely kind and welcoming messages. It is indeed a terrible blow. Working towards acceptance and I’m sure I’ll have lots of more practical questions as we move ahead

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