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Very worried awaiting diagnosis

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    Mmsm A warm welcome to the forum, so sorry you've had to join us. It is a very hard diagnosis to deal with, especially when children are involved, but we are here to support you and help however we can.

    If you can, it would be better if you could copy your first post and pop it into the Introduce Yourself section, and you should get more replies.

    Take care,

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.


      Mmsm So sorry to hear your'll find lots of great people on here. It's a good place for lots of advice and support.
      Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​


        Hey it's sure is a brain freeze but we are here for you. 🤗😘😍😁xx
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx