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    How Long To Wait For MRI Results

    hi everyone
    just wondering how long does it take for
    MRI results to come through
    paddy has his on sunday (30/12), and then the new year was here
    so just in limbo waiting
    love
    emma x

    #2
    Waiting times for results vary around the country. Sometimes you won't hear until the next appointment with whomever requested this, whether you GP or a neurologist. The Xmas holiday likely would delay things. Lynne
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

    Comment


      #3
      Hi Emma,

      I had an appointment booked with my neurologist a couple of weeks after my MRI scan and he had received the results by then.

      When I had my scans, the radiologist asked when my follow-up appointment was, so that the results could reach my neurologist beforehand.

      The length of time it takes probably varies and so it might be worth you phoning the hospital's radiology department to find out when the results are likely to be with Paddy's neurologist.

      It may be the case that Paddy's neurologist is waiting to receive the results before an appointment is sent to Paddy (if he hasn't been given a follow-up appointment yet). But you could possibly phone the neurologist's secretary, as he/she might be able to advise you about this.

      Best wishes
      Kayleigh x
      Last edited by Kayleigh; 3 January 2019, 16:02.

      Comment


        #4
        I agree with Lynne.

        Does Paddy already have a follow up appointment with the Dr who requested the MRI?

        Love Ellie.
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        Comment


          #5
          hi everyone
          thanks for the replies
          when paddy had his initial lumber MRI, (november) the gp said that he didnt think the problem was in his lumber
          as his condition was getting worse
          so he sent 2 referral's one to the neuroosurgeon and one to neurology
          the neurosurgeon sent us a appointment first, so it was him that asked for the recent MRI's so he can rule out anything surgical, so i presume he can then pass paddy on to neurology
          its just frustrating apart from the MRI's and the neurosurgeon tapping and bending his legs and hands
          like he was playing he fiddle
          he's not even had any blood tests,
          our GP is more or less useless
          love
          emma x

          Comment


            #6
            Hi Emma,

            From what you have said, it might be that the follow-up appointment will be with the neurosurgeon who requested the MRI scan or it could be with a neurologist?

            If you are anxious to find out what is going on, it might be worth phoning the neurosurgeon's secretary for clarification about who the appointment will be with and approx. when it will be - or you could wait a while to receive a letter about it. As the others have mentioned, it could take a while to hear from the hospital due to the Christmas/New Year break.

            Thinking of you both,

            Kayleigh x

            Comment


              #7
              Hi Emma,

              Waiting for test results is so frustrating , especially when you know someone has your results. When I had an initial MRI on my spine I was hoping it would provide an explanation for my increasing leg weakness and they rang me a couple of days later to say the scan was fine so they were referring me to a neurologist.

              I think every hospital is different but it might be worth a chase up call to the Secretary. I have had test result letters read to me over the phone .

              Sorry you are feeling in limbo today
              Love Debbie x

              Comment


                #8
                hi everyone
                just a quick update
                just spoke to paddy's consultant secretary, to see if there was any news of his scan
                she said that at the moment its around 8 weeks waiting
                due to the lack of radiologist's available
                how can you move on, without a correct diagnosis
                can i ask how other people cope waiting

                at the moment paddy is having shocking spasticity in both legs
                can he still visit his GP for help without having anything confirmed
                love
                emma x

                Comment


                  #9
                  Hi Emma,

                  I am sorry that you are having to wait so long. I know it is difficult, but it is just a case of trying to take one day at a time. I know, life can be so unfair - and a right pain in the butt sometimes! The 'waiting game' can play havoc with our stress levels, but you are being wonderfully strong and a great support for Paddy - you are doing really well! - and we will always be here to support you on this forum.

                  There is medication that a GP can prescribe for spasticity - but I don't know if it initially needs to be prescribed by a neurologist - other folk on this forum may be able to advise you about this.

                  Love,

                  Kayleigh xx
                  Last edited by Kayleigh; 7 January 2019, 16:55.

                  Comment


                    #10
                    hi kayleigh
                    thanks once again for your reply
                    hopefully the GP will sort something out
                    in the meantime maybe someone on the forum might know of a natural remedy available
                    love
                    emma x

                    Comment


                      #11
                      Hi Emma,
                      Hopefully, someone here will know if the GP is likely to be able to prescribe medication for spasticity (without a diagnosis/without it initially being prescribed by a neurologist) - so that you don't have the hassle of going to the GP, unnecessarily.
                      Last edited by Kayleigh; 7 January 2019, 16:57.

                      Comment


                        #12
                        hi
                        paddys just had his appointment for neurology come through
                        28th of feb still nearly 6 weeks off, but at least its a date
                        good thing is ,its at our local hospital in bury
                        otherwise it would have been a nightmare to get to
                        salford royal for 8.30
                        love
                        emma x

                        Comment


                          #13
                          Hi Emma,

                          That's good to hear that Paddy has got an appointment through - and perhaps the phone call you made to the consultant's secretary helped to get things moving?

                          A little while until the appointment, but as you say, much more convenient that it is at Bury - and, hopefully, with it being so early in the morning, it will be easy for you to get a parking space!

                          Best wishes to you and your family,
                          Kayleigh x
                          Last edited by Kayleigh; 12 January 2019, 17:54.

                          Comment


                            #14
                            Hi Emma. Good luck with the appointment at Fairfield. I had my first one there but it wasn't good. He sent me for a back MRI but discharged me. So that Paddy doesn't get the brush off too I'd write down all symptoms and situations that he's had difficulty with. I guess that I was too positive on my first appointment. Maybe I ought to have moaned more and came with a list like I'm suggesting to you. I go to Salford now and all appointments since diagnosis (that was a morning appointment) have been during the afternoon which is much better. The clinic for my neurologist (Amina Chaouch) is Wednesday afternoons. Good luck. Lynne
                            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
                            I'm staying positive and taking each day as it comes.

                            Comment


                              #15
                              hi lynne
                              thanks for the reply
                              the one good thing is that by the time the appointment comes round
                              they should have all the MRI's results at hand ready to look at (paddy has had 4 so far)

                              just getting a bit fed up and frustrated, once where we took things for granted like nipping out to go shopping
                              we have to plan iike a military operation
                              just dont get me started, on having to push a wheelchair with a 14 stone bloke, from asda's to argos and matalan no dropped curbs

                              anyway thats enough of my rant, hope you are a lot better today
                              love
                              emma x

                              Comment

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