hiya all. new member and diagnosed last week with bulbar onset MND. Since last year I had a suspicion that it could be MND and have known since December of the testing for it. Obviously it did not soften the blow when I had the diagnosis last week. I had done my research though and this group helped me alot in reading peoples struggles, views and insight etc so I thank you for that.
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shelly21 Welcome to a group that no-one ever wanted to join. Here you are amongst friends who have or whose partners or families have this horrible disease. Feel free to ask whatever you like, nothing is taboo or silly. We support each other and have all laughed and cried together.
Take care my friend and keep smiling as difficult as it is at the moment.
RichardRichard
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Hello Shelly21
Really sorry to read this - I sympathise, we are still trying to come to terms with this for Dad... but it is difficult for me to know how it feels for everyone personally.... xCarer for Dad - MND (ALS) 22/4/21 and Mum Alzheimers 26/5/21.
Girding my loins and grinding my battle axe for them both... https://forum.mndassociation.org/cor...ilies/wink.png
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hi shelly
warm welcome to you. i hope we can help you come to terms with this horrible disease. my husband was diagnosed 2 years ago. its not an easy journey but we all work and laugh together here and try to make things a bit easier for each other.
love and hugs
denise xxxxwhen i can think of something profound i will update this.
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Hi Shelly and a warm welcome to the forum from me.
I am so sorry for your diagnosis.. its such a shock even if it is suspected. Well done for making your first post because its not an easy thing to do. As you have seen the forum is a good place for friendship and support.
Take care of yourself,
Love Debbie x
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Hi Shelly. Welcome to forums and as others have said ask away.
You certainly must be shocked to your core about your diagnosis. We are all here to help you and one another. Hugs, Lynne x
ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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