Mum with MND

[Music man's wife Forum Member Find all posts View Profile Close Music man's wife]

Hello Tania, I'm new here but thought I'd tell you about our experience with continuing NHS funding.
The wheels were set in motion by our local MND community practitioner. She contacted the district nurses who did all the necessary paperwork and a couple of weeks later it was approved. This was all fast tracked.
We now have money for homecare plus a contingency fund for a nursing home.
Hope all goes well for you.

[Kayleigh Forum Member Find all posts View Profile Close Kayleigh]

Hi Music Man's wife,

It's good to hear that the appropriate care was put in place for your husband so quickly. We often hear how it is not so easy to get NHS continuing health agreed for a patient, and so thank you for letting us know about your experience of this.

It sounds like your husband has got support from a good healthcare team, which is great.

Best wishes
Kayleigh

[Terry Forum Member Find all posts View Profile Close Terry]

Hi Tina,

It is a hard choice and it's best if mum makes it,especially for now.

Even care homes have their problems with giving the appropriate care and expertise with some of the specialist equipment and feeding tubes etc.

Love Terry