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    #16
    I'm with you on that, Janette, anything for less stress, effort and hassle (even though I hated my hoist for a long time 😏🙄🤩)

    Is it a standing hoist? xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #17
      My OT was reluctant to recommend a portable hoist because we don't have carers and she said it wasn't safe for one person to operate. We are managing transfers but some are becoming difficult.. she recommended ceiling tracks which would take a few months to complete and ironically they couldn't start until I needed them.!!

      When I went to the MND clinic they said it was ok to have a portable hoist and we could keep it for when I needed it.. They felt it would be fine as I am able to push the buttons. Its a safety precaution for if I'm having a bad day or for example, if Stuart had a bad back.

      As Ellie says, none of celebrate getting a hoist but anything to make life easier and safer. I think psychologically its better to have equipment before it becomes an absolute necessity but that might just be me and I didn't always think that way .

      Love Debbie x

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        #18
        No Debs I'm with you on that...............forward planning and all that..................we have someone coming in a couple of weeks so now I am armed!!

        interesting to see what they say about it, my thing is the toileting...........I need to look it up.......how on earth does one do that?

        For us its not even as if Albert "Wants" one its more like me witnessing him getting off the bed twice a day...........recipe for disaster its only a matter of time I fear,

        Sue
        Husband Albert diagnosed PMA Feb 21

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          #19
          Originally posted by Ellie View Post
          I'm with you on that, Janette, anything for less stress, effort and hassle (even though I hated my hoist for a long time 😏🙄🤩)

          Is it a standing hoist? xx
          00C757B4-40AD-4916-8FF2-AF1E12EF762B.jpeg
          Janette x

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            #20
            It’s a bit old and tatty but it will do for now, I’ll probably need another for upstairs anyway, through lift going in soon 🤞🏻
            Janette x

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              #21
              Originally posted by Nettie View Post
              It’s a bit old and tatty but it will do for now,
              Don't worry, there's no such thing as a nice looking hoist 😃 It just needs to lift you up and down safely.

              Originally posted by Nettie View Post
              through lift going in soon 🤞🏻
              Ooh, how exciting! 🤞 indeed. xx
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                #22
                Originally posted by Ellie View Post
                Don't worry, there's no such thing as a nice looking hoist 😃 It just needs to lift you up and down safely.


                Ooh, how exciting! 🤞 indeed. xx
                I’ve waited long enough 🤦🏼‍♀️ Then maybe they’ll get onto my wet room and ramp but I wont hold my breath x
                Janette x

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                  #23
                  Hi Nettie - that's not half as big as I was sort of expecting so that's a plus, I need to find out how you go to the loo with the sling on?

                  Sue
                  Husband Albert diagnosed PMA Feb 21

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                    #24
                    Originally posted by Suefromwakey View Post
                    Hi Nettie - that's not half as big as I was sort of expecting so that's a plus, I need to find out how you go to the loo with the sling on?

                    Sue
                    Hi Sue, I’ve not used it yet so don’t know, I think there is a toileting sling that you can use. As soon as I start using it I’ll let you know x
                    Janette x

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                      #25
                      Suefromwakey Yes Sue, Janette is correct - for that type of hoist, there are 'toileting slings', with openings in the right places so the sling can be left on.

                      Standing hoists take different types of slings which just clip around the torso.

                      Hope you won't have to battle to get a hoist for Albert. xx
                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                        #26
                        Right I've now checked these slings out...............looks a bit of a faff but probably easier than I imagined !! - We actually got someone coming out in a couple of weeks so maybe they are gradually slacking off the restrictions.......did you feel safe Ellie when you started having to use one?
                        Husband Albert diagnosed PMA Feb 21

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                          #27
                          Originally posted by Suefromwakey View Post
                          did you feel safe Ellie when you started having to use one?
                          Yes Sue, I felt safe whilst in the sling and being hoisted but, more importantly, it felt so much easier and safer for both me and the carer to transfer using a hoist, rather than manually. Being hoisted into my wheelchair also gets me in a better, more comfortable sitting position.

                          It may feel a bit odd for Albert the first few times, but I'm sure you'll both get into the swing of things. xx

                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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