Hello all, from reading your posts I think we have been lucky (you know what I mean) to have been given a very quick diagnosis, hubby first saw GP in August and received diagnosis of Spinal Onset MND ALS 4th Dec following an MRI and EMG. Out consultant is apparently one of the leading people in MND research and heads up the dept at Addenbrookes hospital in cambridge for which we feel quite reassured.
Symptoms started during a walking holiday in August and he started suffering severe cramp in one leg, from now til then he has almost totally lost the use of his that leg, he is starting to fall over that foot a lot and he has constant nerve twitching across his body.
He has decided to start the Riluzole and is awaiting the pharmacy to fill his script.
We have two teenage children and this news has absolutely shattered our world which I am sure all who reads this post will know only too well.
I would be grateful to hear any advice regarding practical things we can do now, we have no idea for example what might happen financially when he can no longer work. Anything really as although we have the clinic and the MND Association for advice there can be nothing better then hearing from people first hand who are in or have been through this position.
Thanks
Claire
Symptoms started during a walking holiday in August and he started suffering severe cramp in one leg, from now til then he has almost totally lost the use of his that leg, he is starting to fall over that foot a lot and he has constant nerve twitching across his body.
He has decided to start the Riluzole and is awaiting the pharmacy to fill his script.
We have two teenage children and this news has absolutely shattered our world which I am sure all who reads this post will know only too well.
I would be grateful to hear any advice regarding practical things we can do now, we have no idea for example what might happen financially when he can no longer work. Anything really as although we have the clinic and the MND Association for advice there can be nothing better then hearing from people first hand who are in or have been through this position.
Thanks
Claire
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