New Member - Husband Passed Away in October 2018

[Guest]

My husband was diagnosed in January 2014. He passed away last October (2018) so I guess we were lucky.

I don't know if anybody else experienced how I felt, but I shied away from anything related to MND. From the moment of receiving his MND diagnosis, the disease became central to our lives and I hated it.

Now I feel an overwhelming need to connect with others who know exactly what we've been through, hence me enrolling with this forum.

[Kayleigh]

Hello DH,

Welcome to the forum. I am sorry to hear that your beloved husband has passed away. Please accept my condolences.

It is understandable that you would like support, as it is never easy to cope with the loss of a loved one. I am not in exactly the same situation as you, as I have not been a carer of someone with MND. However, having been diagnosed with MND, I know how devastating this diagnosis can be for the person who is diagnosed and for their family.

From the moment that someone is diagnosed with MND there is a lot to come to terms with and a lot of adjustment to make. Life is never the same again, but like many people on this forum I try to live life as fully as I can. I try to carry on doing as much as possible for as long as possible.

I realise that my diagnosis is as devastating for my loved ones as it is for me. The impact of my diagnosis will probably continue for them long after I am no longer here. I hope that memories of the the happy times I share with my family will be a great comfort to my loved ones in the future. I hope that you are able to find comfort in remembering many happy times you shared with your husband.

I expect that there are many people on this forum who are going through similar experiences and emotions as yours, due to caring for or having cared for a loved one with MND. You have come to the right place for some friendly support. You may also wish to consider having some bereavement counselling, if you haven't done so already.

When a loved one passes away, it may seem like our World has completely shattered, but bit-by-bit we piece our lives together so that we can have some happy times again, just as our loved one would want us to.

Please feel welcome to post on this forum again, as much or as little as you like. I send you my love and best wishes.

Kayleigh x

[Lynne K]

Welcome DH and well said Kayleigh. Lynne x

[Terry]

Hi DH and welcome to the forum;

You can contact Mnda connect directly and/or find your local Mnda branch and speak to them and see about if you want to meet with them.

Hugs, Terry

[Iron Will]

My husband was diagnosed in January 2014. He passed away last October (2018) so I guess we were lucky.

I don't know if anybody else experienced how I felt, but I shied away from anything related to MND. From the moment of receiving his MND diagnosis, the disease became central to our lives and I hated it.

Now I feel an overwhelming need to connect with others who know exactly what we've been through, hence me enrolling with this forum.

so sorry for your loss. you are incredibly brave coming on here and telling us your story. to me that is a giant step in your recovery. well done xx