Hey...New forum member.

[LindaB]

Hi all...been trying for three days to be able to post. Finally today. Wasn't a club I was keen to join but here I am.

Already read a lot of posts and seems a great space to share info advice and such.

I'm 62 been having various tests for about a year. Diagnosed last Friday...I knew it had to be MND as all the classic symptoms.

Anyway will add more now I can access.


Plan for the worst hope for the best or words to that effect.

Linda

[Ellie]

LindaB A warm welcome to the forum Linda - sorry about your diagnosis, but you're amongst friends here, people who know what you're going through.

May I congratulate you on figuring out how to make your signature so early on 😍

Love Ellie.

[Patw]

Hi Linda sorry to welcome u here ,, keep a positive mind and be strong 💪 u will get all the support from all the lovely people here x

[Barry52]

Welcome aboard Linda but sorry you have become a member. Support and advice is given freely and we have a sympathetic ear if you just want to get something off your chest.

Best wishes,
Barry

[LindaB]

LindaB A warm welcome to the forum Lou - sorry about your diagnosis, but you're amongst friends here, people who know what you're going through.

May I congratulate you on figuring out how to make your signature so early on 😍

Love Ellie.

I've had time to read the posts about a signature while still trying to post lol

[Suefromwakey]

Hello Linda, I had a deal of trouble with this forum getting posts on etc etc...........its not the easiest but you will get used to it...........just wish they'd put the spell checker on!

[Mary C]

Hi Linda, welcome to the forum.I guess your minds in a turmoil as you process the diagnosis. Hope support network from NHS will be in place soon .
Best wishes
Mary

[Lynne K]

Hi Linda, welcome here and sorry about your diagnosis. You certainly aren’t alone. Love Lynne x

[LindaB]

Hi Linda, welcome to the forum.I guess your minds in a turmoil as you process the diagnosis. Hope support network from NHS will be in place soon .
Best wishes
Mary

Had a good response from local Neuro rehab team. So SALT & Physio are involved and home visits stated almost immediately.
The worst of times after initial diagnosis 7th April when my every thought was about death & dying. My biggest complaint in my area is lack of immediate psychological support. I mean in that time I contemplated 'checking out' 24\7 & sleep deprived and unable to eat added to the darkness. Like most people now I think good and bad days. For now I'm alive and kicking.

[denise]

Hi Lynda

that's a good start alive and kicking. That's a brilliant attitude. It's lovely to meet you. I hope you feel very welcome here.

love and hugs Denise xxx

[Ellie]

My biggest complaint in my area is lack of immediate psychological support.

Your local hospice should offer you counselling, amongst other therapies and services - check their website to see how to be referred, some are self-refer, others need a referral from a healthcare professional.

And hospices don't only deal with end of life care, but with life-limiting conditions too. xx

[LindaB]

Thanks for the welcome messages and support. I will probably post a lot...yes helps to be able to talk to people who know...hope I can add something to the mix💐💐💐

[matthew55]

Hello LindaB and welcome to a place that no one wants to be but no one ever regrets finding. Remember we are all where you are. 😍😀😁🤗xx

[Deb]

Hi Linda and a warm welcome to the forum from me,

I am so sorry for your diagnosis but I'm glad you've found us. The forum is a good place for friendship and support from people who really understand. The early days are so shocking and bewildering... I hope you are able to access some counselling while you begin to come to terms with things.

Love Debbie x

[Nettie]

Welcome to the forum Linda x