Hello Linda. Welcome. I think the terror thing is fairly common. But perhaps we can all lean on one other a bit x
-
Last edited by Gordan1111; 8 June 2021, 16:52. -
Hello Linda and welcome, it does get easier once you are able to accept it,
shaunAs long as there’s golf and beer I’m happyComment
-
HI Linda,
3 days!!!! Well done! It took me a year to pluck up courage to join and then a few weeks of trying to work out how to post! So much support and laughs (!) here, welcome. XComment
-
Thanks again all for the warm welcome. 😘Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.Comment
-
Great profile pic LindaB ! xxDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
Comment
-
Happy day just on the way to Hyde Park music. 2019 pre the pandemic. #sighOriginally posted by Ellie View PostInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.Comment
-
Hello Linda,
Welcome to the forum. I am so sorry for your diagnosis and hope that this site give you some comfort and support.
My husband was diagnosed in Nov 2020 and I've been in denial and not accessed support. I registered on this forum in April and it has taken me all this time to finally write in introduction today. I have tried many times and just sit in tears as I try to type, so give up. Take care HelenxComment
-
Well you're here now Helen so that's a win...thank you for your message. I saw this after I'd replied to your other post on another topic👍Originally posted by HelenS View Post
Some great ppl on here...much more knowledgeable than I am...so make the most of their experiences...good thing is about this you can drop in and out and take from it whatever you choose.
Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.Comment
-
Welcome Linda xComment
-
Hello Linda, good to have you here but I’m very sorry you’ve had to join us. Welcome to Helen too and the same applies. I have learnt so much since my diagnosis in October 2020 and everyone is very happy to share and support. Please ask.Diagnosed October 2020 - See my blog at https://www.myneurodiary.comComment
-
PeterPan thanks Peter will read your blog with interest. 👍
Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.Comment
-
shrew cheers 👍Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.Comment
-
Hello HelenS and welcome. This is a safe place with no pity but plenty of
understanding. We listen as well as rant.🤭😍👍🤗xxlBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xxComment
-
HelenS Hi, glad that you were able to post today. Welcome. We’re here whenever you feel up to chatting. Take care, Lynne xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
-
LindaB Welcome to our band of brothers and sisters and I assume I should also say persons. You are amongst caring friends.
RichardRichardComment
Comment