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    #16
    Originally posted by Barry52 View Post
    Hello Helen and welcome from me.

    As others have said I recommended counselling and ask your husband’s consultant if they offer the Commend acceptance therapy in your area. It is being rolled out in many areas of the UK where they have an MNDA care centre.
    Barry, thank you for your reply. My husband has been referred to Sheffield as our local hospital is not a specialist centre, as a result he could not access the commend programme. We had our first meeting with Sheffield this week and they have agreed to put him forward for this therapy. Take care .

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      #17
      Originally posted by shrew View Post
      hi Helen, welcome. Although I lost Mick I come on here most days. I could have written your post. I too cried every day, I was worried sick at work too. Has your Husband a pendant to press if he falls?sorry about the wait for the wheelchair
      Hello Shrew, thank you for taking the time to reply. No, my husband does not have a pendant to press but I will ask the OT about this. We seem to have a growing list of adaptations to the house and equipment, it can be overwhelming at times. I make lists of things to do, people to chase etc and then get really upset with myself for not getting through the list. Huge learning curve and learning a lot about myself - if that makes sense.

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        #18
        Originally posted by HelenS View Post

        Barry, thank you for your reply. My husband has been referred to Sheffield as our local hospital is not a specialist centre, as a result he could not access the commend programme. We had our first meeting with Sheffield this week and they have agreed to put him forward for this therapy. Take care .
        That’s great news Helen,

        I am under the care of Sheffield Hallamshire and they have a great team. The reason I am promoting this treatment is because I am part of the steering committee for Commend acceptance therapy.
        I’m going to do this even if it kills me!

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          #19
          Hi Helen it saddens me to hear your story and everyone else’s. I was diagnosed in 2017 and still have not accepted my lot and all the changes in my life and my family. I feel very fortunate though that the services I have are very good. I had an electric scooter donated to me from my local MND group and I now have an electric wheelchair from the NHS. Are you in touch with your local MND group they will have lots of help and advice to share.

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            #20
            Helen, ask for a pendant. I had to come home twice because Mick was on the floor

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              #21
              I have been a lot happier since accepting that I am disabled. 😁😍xx
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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