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    Hi people not been on for a while, what's people's thoughts on any trials and any medication to stop this disease or are we no closer than 20 years ago

    It's closer, Simon, but nothing much concrete to tell you...

    From my jaded, cynical point of view: I have become immune to the media's hyperbole in announcing "breakthroughs" in treatments for MNDs, as these treatments are in mice or in test tubes and years away from being available to put in our mouths, arms or tubes. I shall get excited and hopeful when a treatment is approved, funded and ready to go.

    That said, giant steps have been achieved in the understanding of the genetics of the condition and it's most likely 'treatments' will come in this area. The current thinking is that progression can be slowed down, not necessarily stopped or reversed, making MNDs more of a chronic condition, rather than a fatal one. And, of course, science continuously advances, so the future of MND is (still) unwritten.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.


      I would have to be a hippo not a mouse...........blimey

      I hate the fact that they test on animals for whatever.............It has to be done eh

      All we want is 1 pill - a cure all for this rubbish disease and all that would be good

      Husband Albert diagnosed PMA Feb 21