I now know the name on the forum of someone in my local Facebook group. How would i find their posts?
-
Mum died with MND in 1979 – My sister and I have a wonky gene, probably inherited from mum. Reckon my MND started sometime in 2018. -
I'm sorry EvelynMW 🤔 I would love to help you but I don't really understand what you mean... xxDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
-
Guessing - contact them on Facebook and ask them to message you their username on the forum - or ask Mr Zuckerburg?Comment
-
I know her forum name - a bit like i know who Ellie is - but if i put her forum name in the search bar, i don't find herMum died with MND in 1979 – My sister and I have a wonky gene, probably inherited from mum. Reckon my MND started sometime in 2018.Comment
-
Click the Member List tab near the top of the page, then type the Username into the Search User Name box.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
Comment
-
Ta Ellie. You seem to know everything!Mum died with MND in 1979 – My sister and I have a wonky gene, probably inherited from mum. Reckon my MND started sometime in 2018.Comment
-
No she doesn't
😉when i can think of something profound i will update this.Comment
-
OOOOh! Is that a bit competitive? Anyway, i found the contact - and guess what? No activity! I sent a message, i wonder if i will get a replyMum died with MND in 1979 – My sister and I have a wonky gene, probably inherited from mum. Reckon my MND started sometime in 2018.Comment
Comment