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    Finding Members that we know

    I now know the name on the forum of someone in my local Facebook group. How would i find their posts?
    Mum died with MND in 1979 – My sister and I have a wonky gene, probably inherited from mum. Reckon my MND started sometime in 2018.

    #2
    I'm sorry EvelynMW 🤔 I would love to help you but I don't really understand what you mean... xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      Guessing - contact them on Facebook and ask them to message you their username on the forum - or ask Mr Zuckerburg?

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        #4
        I know her forum name - a bit like i know who Ellie is - but if i put her forum name in the search bar, i don't find her
        Mum died with MND in 1979 – My sister and I have a wonky gene, probably inherited from mum. Reckon my MND started sometime in 2018.

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          #5
          Click the Member List tab near the top of the page, then type the Username into the Search User Name box.
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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            #6
            Ta Ellie. You seem to know everything!
            Mum died with MND in 1979 – My sister and I have a wonky gene, probably inherited from mum. Reckon my MND started sometime in 2018.

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              #7
              No she doesn't
              😉
              when i can think of something profound i will update this.

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                #8
                OOOOh! Is that a bit competitive? Anyway, i found the contact - and guess what? No activity! I sent a message, i wonder if i will get a reply
                Mum died with MND in 1979 – My sister and I have a wonky gene, probably inherited from mum. Reckon my MND started sometime in 2018.

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