Hi there, I am new so thought to introduce myself even if this is mainly a UK group.
I was diagnosed 6 years ago and had symptoms for about a year before that. A shock, yes, but I had already guessed correctly thanks to Dr. Google. I thought to myself, either spend the rest of your time miserable and unhappy,......or make the most of it. In no way did I want to be on my deathbed, and think, hell, I'm sorry now I wasted time feeling sorry for myself.
So hubby and I have traveled widely and thoroughly enjoyed ourselves. Then came Covid, which put a stop to that
One thing we can't afford is time!
I was on a 12 month trial for Squalene which apparently crosses the BB barrier, but I never heard the results.
I'm getting unsteady on my legs, even with the walker now, but I have my electric wheelchair for long distances. Have decided not to have much interference (pegs and such) I will manage on my own. My hubby is happy with our arrangement, he is a godsend.
Not sure what else to say, so will leave it there, cheers.......................
I was diagnosed 6 years ago and had symptoms for about a year before that. A shock, yes, but I had already guessed correctly thanks to Dr. Google. I thought to myself, either spend the rest of your time miserable and unhappy,......or make the most of it. In no way did I want to be on my deathbed, and think, hell, I'm sorry now I wasted time feeling sorry for myself.
So hubby and I have traveled widely and thoroughly enjoyed ourselves. Then came Covid, which put a stop to that

I was on a 12 month trial for Squalene which apparently crosses the BB barrier, but I never heard the results.
I'm getting unsteady on my legs, even with the walker now, but I have my electric wheelchair for long distances. Have decided not to have much interference (pegs and such) I will manage on my own. My hubby is happy with our arrangement, he is a godsend.
Not sure what else to say, so will leave it there, cheers.......................
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