Well wife seems stable and happy which is great news.diagnosed in may this year which brought our lives tumbling down M.N.D assiociation have been brilliant and finally benefits I can see a light at the end of the tunnel (nightmare) now time to enjoy our time I think
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Amen brother 👍😁😄😍xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx -
Well done Ricky and your wife.
being positive and making the most of things is a brilliant attitude.
love and hugs to both of you Denise xxxwhen i can think of something profound i will update this.Comment
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Hi Ricky,
Glad you intend to both enjoy life the best you can.When I look back on the 13 months since diagnosis my hubby and I have enjoyed seeing our friends and family.
I try and plan a week ahead to see friends or rides out etc.Having company is something I enjoy.
Today is a rest day.Had a visit from Catholic deacon this morning.About to watch on line mass.I need to practice in my powered wheelchair..yesterday I backed it into a flower bed😂
Will go for a drive out later and football tonight.
After lunch I will sit in the garden and read while my husband gardens.Simple things bring us happiness.
I hope you and your wife now know where to get advise and support from.Once we met the hospice team we felt more confident we could get on with our lives and call on them when needed.
Best wishes to you both
MaryComment
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Great to hear that, Ricky, that attitude counts more than you think. 🤗😘Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Sounds great Ricky, love Lynne xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Well said and done, Ricky. Wishing you both lots of enjoyment together despite the challenges xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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Well done to you Ricky and your wife. Everyone in life should make the most of everyday but sometimes events get in the way.
Enjoy your time and thank you for reminding us to go for it !
Love Debbie xComment
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Pleased things are settled at the moment, it’s so important to make the most of everyday.
Best wishes Sue xComment
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Watching tv while wife falls asleep on sofa.Thinking of her wanting a Shihtzu dog for companionship. Argh not my cup of tea lolComment
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Ricky135 Your wife is a woman of the same heart as me. My sofa and me are best friends and I dream of golden labradors! 😁😀😍😋xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xxComment
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