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  • Deb
    replied
    A warm welcome to the forum from me John.

    So sorry for your diagnosis but I'm glad you've found us ! The forum is a good place for friendship and support so ask any questions.

    Love Debbie x

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  • Ohitsstoppedworking
    replied
    Thanks all for the kind words of wisdom xx. It’s much appreciated.

    I obviously have questions, but I think I need a bit of time to learn how to navigate this forum and read some of the other posts to see if they have been covered.

    Thanks again

    Leave a comment:


  • Lynne K
    replied
    Hi John, welcome to our forums. I too hope that your symptoms stay on the early track for a long time. If you feel up to some forward planning then how about starting voice banking whilst your voice is still good? It would be in the bag for if needed in the future. Love Lynne x

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  • Gordan1111
    replied
    Warm welcome John

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  • denise
    replied
    hi john

    really nice to meet you. hope we make you feel at home here and i hope you join in with questions and suggestions. its lovely to hear from everyone.

    lots of love and hugs to you and your family
    denise xxx

    Leave a comment:


  • LindaB
    replied
    Ohitsstoppedworking Hey and welcome sorry about your diagnosis...yes some great people on here and it really is amazing how generous forum members are offering advice and sharing experiences about all things MND (& a lot of non MND chit chat)😉👍

    Leave a comment:


  • Shaun
    replied
    Hello John and welcome to this exclusive club
    s

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  • Ellie
    replied
    Ohitsstoppedworking A warm welcome to the forum John - nice to me you and your wife too (great photo!)

    Love Ellie.

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  • PeterPan
    replied
    Ditto what matthew55 said. I’m glad you found us and you’ll find lots of understanding and support here.

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  • matthew55
    replied
    Welcome Ohitsstoppedworking to the place no one wants to be but I'm glad you found us. 👍🤗🤭😄xx

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  • EvelynMW
    replied
    May you stay in the early stages for years to come! It is possible.

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  • Ohitsstoppedworking
    started a topic Hi all

    Hi all

    Ok my name is john and I’m 45,

    I have 4 beautiful kids with my wife.

    I have had 2 neurologist consultants diagnose me with MND. The results of the EMG test have come back with abnormal results across my whole body but predominantly down my left hand side. I currently have about 50% muscle wastage in my left arm and fasciculations in both arms, left neck, left back and both calf muscles.

    I have been going through various tests since April 21, but was confirmed on Thursday July 21.

    I do not yet know which type of MND I have but have no problems with speech, swallowing, or walking…….but obviously this is early stages.

    I think that’s it for now, but would like to say your all amazing, there are some truly determined people on this forum. Xx
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