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Waiting for tests

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    Hi all I’m really struggling and besides myself right now. My swallowing is becoming evidently a problem, choking often on food and liquids, unable to swallow phlegm stuck in the back of my throat. Muscle twitches are more frequent and stronger and now have them in my throat. With all my symptoms combined I know I have this awful disease and it is progressing quickly, I don’t know of anything else that could cause all this. I have been referred to speech and language my appointment is two weeks away. I’m really struggling to cope 😢


      Hi Sarah92 - I don't think you should assume the worst. The neurologist said he didn't think it was mnd, I don't think he would have said that lightly. There are all sorts of other neuro conditions that it could account for symptoms. xx


        Good luck with a solution Sarah. Love Lynne x
        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

        I'm staying positive and taking each day as it comes.