Announcement

Collapse
No announcement yet.

Mnd symptoms for 10 months

Collapse
This topic is closed.
X
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • MNDConnect
    replied
    I'm going to close this thread as I think it has run it's course. It has been confirmed that Craig does not have MND and he is aware of where to seek appropriate support.

    Leave a comment:


  • richard
    replied
    Notwithstanding that Craig is frustrating and irritating so many of us I am sure we do wish him well in finding peace.

    Sorry to use Caps but LETS MAKE THIS THE VERY LAST POST FROM US.

    Leave a comment:


  • Ellie
    replied
    Originally posted by Cae1977 View Post
    I wish you all a fantastic 2022
    Oh. My. Days... Are you for real????????

    Wwe have been diagnosed with a terminal illness, we are dying, many of us are on borrowed time and you wish us a "fantastic 2022" - that says it all. I do not know how you could be so utterly heartless.

    Do not reply.


    Leave a comment:


  • Cae1977
    replied
    Thank, sorry for spelling mistake

    Leave a comment:


  • Cae1977
    replied
    Good afternoon , if like to know Hank everyone on this forum for there very kind advice over the last 14 months , I wish you all a fantastic 2022 and I will keep my fingers crossed for a cure this year.

    God bless

    Craig

    Leave a comment:


  • Zante
    replied
    Originally posted by Ellie View Post
    Perhaps we should all stop posting further on this thread - it's going around in circles.
    Totally agree x

    Leave a comment:


  • Mary C
    replied
    Hi Craig,
    just close it down now as this is not a place for you.We can’t help you on here.Please seek some counselling or other support.

    Many people on here as Ellie pointed out to you can barely breathe without invasive / non invasive support and a whole list of horrendous physical problems.
    Its clearly making some forum members annoyed that you are persisting to use the forum without an MND diagnosis.

    Please let this be the end of contact from you on here Craig.I wish you well for seeking more appropriate help.
    Dont waste another 14 months of your life Craig.You are having ongoing support from the QE hospital birmingham and there isn’t anything on here to top that.

    Try and enjoy every day you are given and accept that this just isn’t the place for you.

    Regards
    Mary

    Leave a comment:


  • Ellie
    replied
    Perhaps we should all stop posting further on this thread - it's going around in circles.

    Leave a comment:


  • Cae1977
    replied
    Hi linda

    My apologies if you thought I was being rude to you, I actually said I thought the emg consultant was a bit rude for saying I had a mental health issue , haveing taken my money off me to carry out the emg test.

    All the very best

    Craig

    Leave a comment:


  • Cae1977
    replied
    Hi.mathew

    I.have not once insulted anyone other than give my upmost respect, I'm I a position where the emgs are saying no mnd but then I've got lead mnd nurses and a mnd neurologist saying I may have signs off slow progression, even the gp has noted muscle wasting , I have no.mental illness , I'm just a bit tired off being told one thing then told another, it is causeing me to.be anxious , this has been going on the best part off 14 months.

    All the very best

    Craig

    Leave a comment:


  • matthew55
    replied
    Craig you have a serious mental health issue. Do not come on here and insult my friends.

    Leave a comment:


  • Cae1977
    replied
    Zante

    I did say Linda was being rude, I said the emg consultant was , ideed I have been told it's not mnd by 3 x emg test and 2 neurological clinical workup and the good advice folks on.here and mnd connect, but when you have a lead mnd clinical nurse say that I have 4 red flay symptoms for mnd , it's going to cause anxiety and worry, I thinck that's why they want me in at the mnd clinic in Birmingham, I wish I could forget about this but one health expert is saying one thing then the emg is saying another , also ent consultant cant say for certain the swallowing issues are not mnd related.
    like I said before I have the upmost respect for all off you .

    Leave a comment:


  • Zante
    replied
    Craig I dont think anyone is ever going to change your mind and determined thinking that you have mnd. It states categorically that it isnt mnd and suggests you find support and help for the mental illness that Linda explained. How can you continue to come here posting? Linda was not being rude to you at all. After some of the things you have said on here and how you continue to do so amazes me that people have made the effort and time to actually reply to you. Please stop now for everyone's sake.

    Leave a comment:


  • Cae1977
    replied
    Hi
    linda
    I.thinck it's a bit rude that , the emg consultant put that on there , he was happy to take the£500 ti pay private for this , so I dont waste nhs time and money , he even admitted that there were weakness in forearms , I would never put my family through all this if there was nothing wrong ,I wonder why dr sirivisian lead mnd neurologist at Birmingham mnd clinic still wants to see me haveing read this emg report, i have the upmost respect for all off you guys , I.have no mental illness .

    Best wishes

    Leave a comment:


  • LindaB
    replied
    Cae1977 sadly the most telling part of your letter is that the advice is for you to seek mental health support for your Somatoform symptoms.

    "Somatoform disorder, also known as somatic symptom disorder (SSD) or psychosomatic disorder, is a mental health condition that causes an individual to experience physical bodily symptoms in response to psychological distress. "

    As others have said this is not the right forum for you- we are all either diagnosed with MND or carers for someone with that diagnosis. You should really follow the advice given by this medical professional.

    Your distress must be overwhelming and that's awful.
    ​​However your continued posts are neither compassionate or respectful you need to realise that.
    Get the right help you need....it's not here.

    ​​​​​​​
    Last edited by LindaB; 4 December 2021, 12:28.

    Leave a comment:

Working...
X