My 23 year old grandson was diagnosed with MND aged 22 in 2020, he died a year later. Very sad.
-
-
So sorry for your loss Sophia.βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β -
Very sad Sophia..So young .
MaryComment
-
It's a tragedy Sophia on every levelComment
-
I feel your pain.Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
-
Oh Sophia, thatβs awful to suffer MND so young. Iβm very sorry for your loss, LynneALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
-
Sophia I feel for you and also your grandsons parents and siblings.
RichardRichardComment
-
Sophia Lane what a terrible loss....cannot begin to imagine that pain for you and your family. πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
-
Oh Sophia, I am so very sorry for your loss xComment
-
so sorry to hear this xComment
-
So sorry to hear this π’Janette xComment
Comment