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Sophia Lane

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    Sophia Lane

    My 23 year old grandson was diagnosed with MND aged 22 in 2020, he died a year later. Very sad.

    #2
    So sorry for your loss Sophia.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    ​

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      #3
      Very sad Sophia..So young .
      Mary

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        #4
        It's a tragedy Sophia on every level

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          #5
          I feel your pain.
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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            #6
            Oh Sophia, that’s awful to suffer MND so young. I’m very sorry for your loss, Lynne
            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

            I'm staying positive and taking each day as it comes.

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              #7
              Sophia I feel for you and also your grandsons parents and siblings.

              Richard
              Richard

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                #8
                Sophia Lane what a terrible loss....cannot begin to imagine that pain for you and your family. πŸ™
                Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

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                  #9
                  Oh Sophia, I am so very sorry for your loss x

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                    #10
                    so sorry to hear this x

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                      #11
                      So sorry to hear this 😒
                      Janette x

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