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Derbyram21 A warm welcome to the forum Derby β½ βΎ (yeah, it's a baseball, couldn't find a cricket ball π)
Love Ellie. π
Hang on... I found this π - is this a cricket bat?βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
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Derbyram21 welcome to a great forum with excellent members full of useful advice & tips. Sorry for your diagnosis...shattering news. πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ
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Hi βDerbyram21β welcome here. Youβve found the right place for tips, chat and sometimes humour. It must be hard for you at the moment as weβve all been there but hopefully youβll get all of the support that you need from your local palliative care services. Take care, LynneALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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[QUOTE=Ellie A warm welcome to the forum Derby β½ βΎ (yeah, it's a baseball, couldn't find a cricket ball
Ellie - Did you know a baseball is quite appropriate or was it just a fluke?
Diagnosed June 2019. Bulbar palsy. Lost voice. Using PEG fitted April 2021 alongside eating normally albeit slowly and messily at times.
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Originally posted by John D View PostEllie - Did you know a baseball is quite appropriate or was it just a fluke?
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
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Lol Baseball very apt or used to be in the old days. Thank you for your warm welcome ππ l am getting support but it's certainly very daunting ! As l said to the Specialist Nurse ( who never answered lol)in the day of diagnosis if this had been 4 yrs ago l would have gone and lit a fag up ! Lots to learn on this journey. Once again my love and light to you all x
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