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Vision problems

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    Vision problems

    Hi, does anybody experience problems with their sight after using NIV?
    My husband has complained of white spots, or one large white circle and not being able to see at all for a short while on occasion, all after using niv through the day.
    He wears it all night with no problem and is now using it more through the day but this is putting him off using it.

    KK64 Hmmm, that’s a strange one… It may not be NIV or MND related.

    There’s no air escaping into your husband’s eyes from the mask I presume and he’s breathing comfortably on the same settings he uses at night and he isnt on any meds which may cause vision problems?

    Tbh, if it were me, my first port of call would be an optician to rule out eye problems (Specsavers does home visits) then take it from there. xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user