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    Hi everyone!

    Hi all,

    My mother in law has been suffering from MND for the past 8 years. It is difficult to see her lose her ability to move and speak. She has also become more emotional and difficult to understand. Hope to get to know the MND journey of others and exchange experiences in this forum.

    best regards,

    Hello to you Syed Hassan welcome to the land where support, advice, help and love are offered freely and without prejudice. Please ask whatever you like, someone will be there for you. πŸ‘πŸ˜„πŸ€—πŸ˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx


      Hi Matthew,

      Thanks for the warm welcome! Its nice to know that there is a good support group to learn from one another.

      Much appreciated!


        Welcome Syed ​​​


          Syed Hassan A warm welcome to the forum Hassan, the place for support, advice, laugh, love and friendship πŸ€—

          I hope your MIL has good support from medical and allied professions . She can get help for her communication and emotional difficulties.

          Love Ellie.
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.



            Hi Hassan,

            Hope this forum can be of some help.
            Is your MIL getting any help from health professionals ?Is she getting help with some sort of communication aid? Not able to speak or move is enough to make anyone emotional.

            It would be useful for you to share what help your MIL currently has.

            There are all sorts of communication aids and if she hasn’t got something to help her then this might be a starting point.So has your MIL has speech and language team involved?
            MND association has information on many issues that may occur due to MND and who to contact if needed.

            Best. Wishes


              Syed Hassan welcome to a great place for support. Although you've probably learnt a lot in 8 yearsπŸ‘
              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​