I've just joined as diagnosed 1/7 this year. My husband was very ill in hospital & he never found out I have MND before he passed away on 19/8. I'm devasted about the year I've had so far. I never would have coped without my wonderful family.
Announcement
Collapse
No announcement yet.
Glynis Doe
Collapse
X
-
A warm welcome to the forum Glynis - heartfelt condolences on the loss of your beloved husband.
Originally posted by Glynis Doe View PostI'm devasted about the year I've had so far.
โDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
โ
Comment
-
-
Hello Glynis Doe welcome to our band of livers. We are all taking different routes down the same path so feel free to ask anything you like. No stupid questions here. Stay Strong.๐๐ค๐๐xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐ค๐๐ค๐xx
Comment
-
-
Hi Glynis,
so sorry you are coping with MND and bereavement.So glad you have support from your family and hope you can support each other.
I guess you have had an emotional rollercoaster and continue to do so.
This is a good place to share and receive support and also MND Association.
Best wishes
Mary
Comment
-
-
Glynis Doe
โโCondolences for the sad loss of your husband - such an awful lot to deal with and on top of that covid isolation too. It's good to hear you have a supportive family.
Lots of helpful advice on here with some great people who can answer most questions.
๐ค๐Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.โโโโโโ
Comment
-
-
Hi Glynis Doe I thought Iโd had a bad year in 2020, but this year has been monumentally more difficult for you. Those of us lucky enough to have family around are very lucky, and I hope you continue to get that love and support. Youโre very welcome here, ideas and advice always freely given. Best wishesDiagnosed October 2020 - See my blog at https://www.myneurodiary.com
Comment
-
Comment