Announcement

Collapse
No announcement yet.

Glynis Doe

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Glynis Doe

    I've just joined as diagnosed 1/7 this year. My husband was very ill in hospital & he never found out I have MND before he passed away on 19/8. I'm devasted about the year I've had so far. I never would have coped without my wonderful family.

    #2
    Hello Glynis - welcome to our club. It's exclusive! x

    Comment


      #3
      Welcome

      There is so much great information and support here.

      So sorry for the loss of your husband.

      Best wishes


      Donna

      Carer for husband diagnosed MND (possible fail Arm type in July 2020)

      Comment


        #4
        Hi Glynis. Welcome to forums. Youโ€™ve found a fab place. You have had a horrid year. I hope that your wonderful family are close by. Lynne x
        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

        I'm staying positive and taking each day as it comes.

        Comment


          #5
          A warm welcome to the forum Glynis - heartfelt condolences on the loss of your beloved husband.

          Originally posted by Glynis Doe View Post
          I'm devasted about the year I've had so far.
          I can only imagine how hard it's been for you Glynis, just glad you have wonderful family and now... you have us too ๐Ÿ˜๐Ÿค—๐Ÿ˜˜
          โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          โ€‹

          Comment


            #6
            Hello Glynis Doe welcome to our band of livers. We are all taking different routes down the same path so feel free to ask anything you like. No stupid questions here. Stay Strong.๐Ÿ‘๐Ÿค—๐Ÿ˜๐Ÿ˜xx
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

            Comment


              #7
              Hi Glynis,
              so sorry you are coping with MND and bereavement.So glad you have support from your family and hope you can support each other.
              I guess you have had an emotional rollercoaster and continue to do so.
              This is a good place to share and receive support and also MND Association.
              Best wishes
              Mary

              Comment


                #8
                Oh Glenis, I am so very sorry that you are having to cope with the loss of your husband and a diagnosis of MND.... heartbreaking!

                I'm so glad you have a loving, wonderful family and I hope you'll find our forum a source of friendship and support too.

                Love and hugs,
                Debbie x

                Comment


                  #9
                  Glynis Doe
                  โ€‹โ€‹Condolences for the sad loss of your husband - such an awful lot to deal with and on top of that covid isolation too. It's good to hear you have a supportive family.
                  Lots of helpful advice on here with some great people who can answer most questions.

                  ๐Ÿค—๐Ÿ˜˜
                  Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.โ€‹โ€‹โ€‹โ€‹โ€‹โ€‹

                  Comment


                    #10
                    I Glynis,
                    What a terrible year you have had but you have found the strength to join us here and i hope we can give you some kind words and support to help you on your journey. Xxx

                    Comment


                      #11
                      Hi Glynis Doe I thought Iโ€™d had a bad year in 2020, but this year has been monumentally more difficult for you. Those of us lucky enough to have family around are very lucky, and I hope you continue to get that love and support. Youโ€™re very welcome here, ideas and advice always freely given. Best wishes
                      Diagnosed October 2020 - See my blog at https://www.myneurodiary.com

                      Comment

                      Working...
                      X