Found out eleven days ago

[keno]

Hello my name is Ken and I am 75 years old
After starting with a weak arm in January I was told the other week that I have MND. I live on my own and struggle now to shower and keep the house clean.
I find it very frightening as I don't even know how bad I will get or how long I will live.
I have so far had one visit from a nurse who was very helpful and I have volunteered for a research project so I will not feel so useless.

[Gordan1111]

Welcome Ken. We're here for you. None of us know how this awful disease will progress but we're here for you and for each other x

[Ellie]

keno A warm welcome to the forum Ken - you have found your tribe, you're amongst people who know exactly what you're going through.

Good for you taking part in a research project - which one is it?

Love Ellie.

[matthew55]

Hi Ken and welcome to the family. Here is the best place for help, advice, support and love. Remember to take it one day at a time. Stay Strong. 👍🤗😃😁xx

[keno]

Thank you I feel better knowing I am not facing this alone.
The trial is called TUDCA ALS and I am meeting the doctor running it at the Royal Stoke hospital on Friday morning.

[LindaB]

keno it's all bewildering & overwhelming but as others have said just take a day at a time. Welcome to the MND forum and keep on posting.👍

[keno]

keno it's all bewildering & overwhelming but as others have said just take a day at a time. Welcome to the MND forum and keep on posting.👍

Thank you

[Ellie]

keno How did the visit from the SLT go yesterday Ken? xx

[keno]

keno How did the visit from the SLT go yesterday Ken? xx

Great
she mainly chatted. Think she was saying me up.
she is going to sort me out with voice banking just in case.

[Ellie]

she is going to sort me out with voice banking just in case.

Great stuff Ken 👍👍😘

[EvelynMW]

I cannot imagine facing this alone, I feel for you. And trust the progress will be very slow. I am one with a very slow progress, and i hope you will join us slow coaches

[matthew55]

None of us are truly alone when they have us for company. 👍😁🤗😍xx