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Found out eleven days ago

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    Found out eleven days ago

    Hello my name is Ken and I am 75 years old
    After starting with a weak arm in January I was told the other week that I have MND. I live on my own and struggle now to shower and keep the house clean.
    I find it very frightening as I don't even know how bad I will get or how long I will live.
    I have so far had one visit from a nurse who was very helpful and I have volunteered for a research project so I will not feel so useless.

    #2
    Welcome Ken. We're here for you. None of us know how this awful disease will progress but we're here for you and for each other x

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      #3
      keno A warm welcome to the forum Ken - you have found your tribe, you're amongst people who know exactly what you're going through.

      Good for you taking part in a research project - which one is it?

      Love Ellie.
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

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        #4
        Hi Ken and welcome to the family. Here is the best place for help, advice, support and love. Remember to take it one day at a time. Stay Strong. πŸ‘πŸ€—πŸ˜ƒπŸ˜xx
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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          #5
          Thank you I feel better knowing I am not facing this alone.
          The trial is called TUDCA ALS and I am meeting the doctor running it at the Royal Stoke hospital on Friday morning.
          ​​​​​​​

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            #6
            keno it's all bewildering & overwhelming but as others have said just take a day at a time. Welcome to the MND forum and keep on posting.πŸ‘
            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

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              #7
              Originally posted by LindaB View Post
              keno it's all bewildering & overwhelming but as others have said just take a day at a time. Welcome to the MND forum and keep on posting.πŸ‘
              Thank you

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