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Could this be MND?

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    Could this be MND?

    Hi everyone. Firstly, a huge thank you to the amazing people on this forum. Both those asking helpful questions to those providing insightful answers. It’s a huge source of information and guidance and I’ve found it to be a great help.

    I’m Looking for some guidance from those who either live with ALS or look after someone that does regarding my symptoms.

    I’ve had a headache for about 5 weeks now. It been pretty persistent and only the very occasional day goes by where I don’t notice it.

    About 3 weeks ago, I noticed a ‘feeling’ under my right eye. Best described as like having excess skin under the eyes, like a fold or wrinkle. This feeling turned into an eye twitch which then moved to my left eye and my left eye has been twitching consistently for 3 weeks now.

    About 1 week ago, I then had a muscle twitch (what I now believe to be a fasiculation) above my right knee. It lasted perhaps a day or 2 non stop and ever since then, my knee will ‘click and crunch’ whenever I bend down. This was not there before and is there every time I move the knee.

    I started to do some ‘light’ strength exercises over the past three days (attempting squats, plank, push ups) after my attempts, my body feels incredibly week and shakey. More than I’ve ever experienced before. It seems to settle an hour or two later, it somewhat shakey for rest of the day. My knees seem to feel very week all the time. Going down stairs especially.

    Very dizzy when standing up after laying down or squatted down. Like I’m going to faint.

    seem to have lost a great deal of weight in a short period of time, around 4-5 months.

    ​Shortly after the right knee twitch, I started experiencing some random twitches around the body. Eyes, knees then calf’s, top lip, left cheek bone, right buttock.

    Shortly after these twitches came on, I felt a ‘pulsing’ and ‘buzzing’ in my left foot. This seems to have moved to my right foot and both are going further up the leg and calf on both sides.

    Finally, I’ve been getting pretty bad oral Candida too.

    My GP is calling me tomorrow where I shall be talking through all the above.

    So I guess my question to you amazing bunch is…. Does anyone have any experience with the same symptoms above? Do they sound in line with anything you’ve seen or felt? Are there any kind of links or patterns you can see from the timeline / symptoms I’ve stated.

    I know there’s lots of people, just like me, experiencing these symptoms and it building a sense of worry - so I cannot thank you e rough in Advance for sharing your experiences, thoughts and knowledge on the above. It would mean a great deal as I start to work through things with my GP

    Thanks all.


    Sorry but we are not doctors nor neurologists so we cannot help you. Seek a professional opinion soonest and pray it isn't MND/ASL 🙏🤘😁🤗xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx


      Hi Jim - as Matthew says no one on here will say that you have MND and to be honest your GP will be pretty much clueless also - if they don't specialise in it they seriously don't have a clue, it took 2 years for my husband to get a diagnosis and even then consultants were saying he didn't have it - he had to insist on a 2nd opinion.

      The only thing I can say to you is when you speak to your GP tomorrow make sure they understand and don't get fobbed off - they may well say your symptoms haven't been going very long but be prepared to be assertive.

      Husband Albert diagnosed PMA Feb 21


        Actually my GP was the first to mention MND. He said it could be Cancer or MND. I prayed for Cancer. God didn't listen. 😉😁🤗🤘xx
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx


          As Matthew said, nobody here is a doctor or specialist neurologist. Having said that, I’ve never heard of headache, clicking joints and a ‘feeling’ under the eye as being symptoms associated with MND. Certainly not part of my experience. You really need to have the conversation with your GP.
          Diagnosed October 2020 - See my blog at


            Jim, I agree that you’ll need to speak with your GP first to discuss your perceived symptoms and your concerns. Then he or she can refer you if necessary to a specialist of one or other department x
            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

            I'm staying positive and taking each day as it comes.