Hi everyone. Firstly, a huge thank you to the amazing people on this forum. Both those asking helpful questions to those providing insightful answers. It’s a huge source of information and guidance and I’ve found it to be a great help.
I’m Looking for some guidance from those who either live with ALS or look after someone that does regarding my symptoms.
I’ve had a headache for about 5 weeks now. It been pretty persistent and only the very occasional day goes by where I don’t notice it.
About 3 weeks ago, I noticed a ‘feeling’ under my right eye. Best described as like having excess skin under the eyes, like a fold or wrinkle. This feeling turned into an eye twitch which then moved to my left eye and my left eye has been twitching consistently for 3 weeks now.
About 1 week ago, I then had a muscle twitch (what I now believe to be a fasiculation) above my right knee. It lasted perhaps a day or 2 non stop and ever since then, my knee will ‘click and crunch’ whenever I bend down. This was not there before and is there every time I move the knee.
I started to do some ‘light’ strength exercises over the past three days (attempting squats, plank, push ups) after my attempts, my body feels incredibly week and shakey. More than I’ve ever experienced before. It seems to settle an hour or two later, it somewhat shakey for rest of the day. My knees seem to feel very week all the time. Going down stairs especially.
Very dizzy when standing up after laying down or squatted down. Like I’m going to faint.
seem to have lost a great deal of weight in a short period of time, around 4-5 months.
Shortly after the right knee twitch, I started experiencing some random twitches around the body. Eyes, knees then calf’s, top lip, left cheek bone, right buttock.
Shortly after these twitches came on, I felt a ‘pulsing’ and ‘buzzing’ in my left foot. This seems to have moved to my right foot and both are going further up the leg and calf on both sides.
Finally, I’ve been getting pretty bad oral Candida too.
My GP is calling me tomorrow where I shall be talking through all the above.
So I guess my question to you amazing bunch is…. Does anyone have any experience with the same symptoms above? Do they sound in line with anything you’ve seen or felt? Are there any kind of links or patterns you can see from the timeline / symptoms I’ve stated.
I know there’s lots of people, just like me, experiencing these symptoms and it building a sense of worry - so I cannot thank you e rough in Advance for sharing your experiences, thoughts and knowledge on the above. It would mean a great deal as I start to work through things with my GP
Thanks all.
J
I’m Looking for some guidance from those who either live with ALS or look after someone that does regarding my symptoms.
I’ve had a headache for about 5 weeks now. It been pretty persistent and only the very occasional day goes by where I don’t notice it.
About 3 weeks ago, I noticed a ‘feeling’ under my right eye. Best described as like having excess skin under the eyes, like a fold or wrinkle. This feeling turned into an eye twitch which then moved to my left eye and my left eye has been twitching consistently for 3 weeks now.
About 1 week ago, I then had a muscle twitch (what I now believe to be a fasiculation) above my right knee. It lasted perhaps a day or 2 non stop and ever since then, my knee will ‘click and crunch’ whenever I bend down. This was not there before and is there every time I move the knee.
I started to do some ‘light’ strength exercises over the past three days (attempting squats, plank, push ups) after my attempts, my body feels incredibly week and shakey. More than I’ve ever experienced before. It seems to settle an hour or two later, it somewhat shakey for rest of the day. My knees seem to feel very week all the time. Going down stairs especially.
Very dizzy when standing up after laying down or squatted down. Like I’m going to faint.
seem to have lost a great deal of weight in a short period of time, around 4-5 months.
Shortly after the right knee twitch, I started experiencing some random twitches around the body. Eyes, knees then calf’s, top lip, left cheek bone, right buttock.
Shortly after these twitches came on, I felt a ‘pulsing’ and ‘buzzing’ in my left foot. This seems to have moved to my right foot and both are going further up the leg and calf on both sides.
Finally, I’ve been getting pretty bad oral Candida too.
My GP is calling me tomorrow where I shall be talking through all the above.
So I guess my question to you amazing bunch is…. Does anyone have any experience with the same symptoms above? Do they sound in line with anything you’ve seen or felt? Are there any kind of links or patterns you can see from the timeline / symptoms I’ve stated.
I know there’s lots of people, just like me, experiencing these symptoms and it building a sense of worry - so I cannot thank you e rough in Advance for sharing your experiences, thoughts and knowledge on the above. It would mean a great deal as I start to work through things with my GP
Thanks all.
J
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