Announcement

Collapse
No announcement yet.

Toilet Seat Risers

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Toilet Seat Risers

    Hello

    I'm new to the forum and I'm looking for some advice. I'm 62 and was diagnosed with limb onset MND in August 2020 and I've deteriorated quite rapidly. My local outreach team has supplied me with various aids but I'm now struggling to get off the toilet. I'm currently using a 4" toilet seat riser with a separate frame but my husband is now having to help me as I'm unable to stand fully upright. We have looked at the Drive Solo Toilet Lift but it's quite expensive and I'm not sure how long I would be able to use it. I would be grateful if anyone has any advice or guidance.

    Many thanks
    Sue Batten

    #2
    Hi Sue, I think I am in a similar position to you. I have just changed my 4" riser for a 6" riser but we have also been supplied with a Molift Raiser Pro which is great for small spaces
    https://www2.etac.com/c4documents/mo..._en_585658.pdf

    https://www.youtube.com/watch?v=Zc1JOlHK9WY


    which my partner uses for transfers to the toilet as I can still weight bear though my standing and walking are compromised.
    It was supplied by our specialised physios. I hope this helps
    Last edited by Rosemary6NT; 1 November 2021, 15:55.

    Comment


      #3
      Welcome Sue Batten I can't help you with this but I'm eager to hear a solution for myself. Having this isn't easy but now at least you're not facing it alone. ๐Ÿ˜๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

      Comment


        #4
        Sue Batten A warm welcome to the forum Sue.

        Re the Drive Solo Toilet Lift: you might be lucky and get good use from it or you might spend a couple of grand on it and only get a couple of weeks use from it, unfortunately it's impossible to say...

        I'm conscious this is my response to your first post and I don't really want to frighten the pants of you but... our balance tends to go quite early on and we can topple over for no apparent reason, so the thoughts of anyone using that seat riser fills me with fear, quite frankly.

        Your OT should assess you and provide equipment to help you (and your husband) live life safely - maybe a shower chair/commode which goes over the loo and a standing hoist or patient turner.

        Contact your OT and see what they will provide, then perhaps it'll be easier to make a decision about the Drive Solo Toilet Lift.

        Love Ellie.
        โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        โ€‹

        Comment


          #5
          Sue Batten sorry I've no info about the toilet riser....but others have.
          Just wanted to say welcome to the forum...and good luck in your search for the right kit.
          ๐Ÿ‘๐Ÿป๐Ÿ˜‰
          Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.โ€‹โ€‹โ€‹โ€‹โ€‹โ€‹

          Comment


            #6
            Hi Sue and a warm welcome to the forum, I'm sorry for your diagnosis.

            Its so hard to order new equipment especially in the early days. People progress at different rates and it's difficult to anticipate future needs. ( and it's painful to think ahead )

            When we had our wet room fitted we chose a " comfort " toilet which is really high. It has side rails and I can still transfer sideways on to it with help. However it is too high for a commode/shower chair to go over it so it probably wasn't the best choice.

            Take care of yourself,
            Love Debbie x

            Comment


              #7
              Hi Sue
              We have recently had a โ€œ Gerebitโ€ wash/ dry toilet installed by the council as my husband couldnโ€™t get off the toilet without my help and that was having a big impact on me. The toilet can been raised pending on a persons height by the bottom of the toilet. Itโ€™s been a god send as I donโ€™t have to go with him each time he needs the loo. They are expensive around ยฃ3000. Speak to your Occupational therapist. Best of luck

              Comment


                #8
                Welcome Sue xx

                Comment


                  #9
                  Hello Debs, Actually we have the high toilet 500 and someone came and Albert was measured up for a shower/commode chair which does fit over the high toilet - When we had the wetroom conversion done,

                  down side is I am only 5' 2" so my feet dangle but I have to say if ever I try to get on someone else's toilet (Standard height) I don't half notice the difference - I have gotten used to the high one!

                  Originally we wasted 2 grand on "Doing" the bathroom up for him - including our first high rise loo - all to be ripped out less than a year later when we had to have the wet room done.

                  My guidance to you Sue is get adaptations to look at your facilities before you lash out any money

                  Best wishes

                  Sue
                  Husband Albert diagnosed PMA Feb 21

                  Comment


                    #10
                    Weโ€™ve just had a geberit fitted but been told just to use it manually until we are shown how to use it ๐Ÿคฆ๐Ÿผโ€โ™€๏ธ But who actually shows you ๐Ÿคทโ€โ™€๏ธ Theyโ€™ve not even left a manual ๐Ÿ™„ what is the point? ๐Ÿ˜ฌ
                    Janette x

                    Comment


                      #11
                      Originally posted by Nettie View Post
                      But who actually shows you
                      YouTube xx

                      โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                      โ€‹

                      Comment


                        #12
                        Hi Sue and welcome. Itโ€™s very difficult in the early days to think ahead and spend wisely. My most beneficial spend was on a ceiling hoist. I had one put in my bedroom as well. It still means I am independent in using the toilet, having a shower and getting in and out of bed. My OT was always bemused by me doing it myself but for me that was essential. I do have someone who can help but really try to avoid it while I still can. I know itโ€™s a tremendous amount to think about but never hesitate to ask. All the best. Xx

                        Comment


                          #13
                          Today I got a bit put on my bed to help me get out of bed. It's only taken me 22 months. ๐Ÿ˜‰๐Ÿ˜…๐Ÿ˜๐Ÿ˜xx
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

                          Comment


                            #14
                            Originally posted by matthew55 View Post
                            Today I got a bit put on my bed to help me get out of bed.
                            On your inflatable bed? xx

                            โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            โ€‹

                            Comment


                              #15
                              On my all singing and dancing bed. First try out tomorrow morning. Wish me luck! ๐Ÿ˜‰๐Ÿ˜‚๐Ÿ˜˜๐Ÿ˜xx
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

                              Comment

                              Working...
                              X